30
Participants
Start Date
January 19, 2016
Primary Completion Date
March 31, 2022
Study Completion Date
March 31, 2022
Medical history questionnaire
Epidemiological review of past medical/dental history; residential history; occupational history; family history of neurodegenerative disease.
Clinical assessment and review
History of current illness; neurological examination including general appearance, full cognitive assessment and physical examination; MRI research brain scan.
Participant follow-up
Hospital patient management system; regular telephone contact with patient/representative.
Blood or buccal sample
Codon-129 genotyping; storage for future research.
Post mortem examination
Brain tissue donation to the Edinburgh Brain and Tissue Bank for research,including investigations for evidence of prion disease.
CJD Research and Surveillance Unit, Western General Hospital, Edinburgh
NHS Lothian
OTHER_GOV
Department of Health, United Kingdom
OTHER_GOV
University of Edinburgh
OTHER