Decision Making and Future Planning for Children With Complex Illness

CompletedOBSERVATIONAL
Enrollment

32

Participants

Timeline

Start Date

October 31, 2015

Primary Completion Date

January 31, 2017

Study Completion Date

January 31, 2017

Conditions
Long-Term CarePalliative Care
Interventions
OTHER

Observation

Observation of clinic appointments and ward rounds if the child is admitted to hospital during the study period.

OTHER

Interviews

Semi-structured interviews will be conducted approximately 3 times during the study period with each participant.

OTHER

Medical notes review

The child's electronic medical record will be accessed periodically to identify any planned appointments or periods of hospitalisation and their medical notes will also be reviewed at the end of the study.

Trial Locations (3)

Unknown

Sherwood Forest Hospitals NHS Trust, Mansfield

Nottingham University Hospitals NHS Trust, Nottingham

Sheffield Children's Hospital, Sheffield

All Listed Sponsors
lead

University of Nottingham

OTHER

NCT02579577 - Decision Making and Future Planning for Children With Complex Illness | Biotech Hunter | Biotech Hunter