Development and Validation of Patient Reported Outcome (PRO) Measures for Individuals With Neurofibromatosis 1 (NF1) and Plexiform Neurofibromas (pNFs)

RecruitingOBSERVATIONAL

Enrollment

486

Participants

Timeline

Start Date

November 13, 2015

Primary Completion Date

June 30, 2026

Study Completion Date

December 31, 2026

Conditions

Neurofibromatosis 1Plexiform Neurofibromas

Trial Locations (6)

RECRUITING

Children's Hospital of Philadelphia, Philadelphia

COMPLETED

Children's National Medical Center, Washington D.C.

RECRUITING

National Institutes of Health Clinical Center, Bethesda

ACTIVE_NOT_RECRUITING

Johns Hopkins University, Baltimore

ACTIVE_NOT_RECRUITING

University of Chicago, Chicago

COMPLETED

Cincinnati Children's Hospital and Medical Center Institution, Cincinnati

All Listed Sponsors

lead

National Cancer Institute (NCI)

NIH