NCT02398786View on ClinicalTrials.gov

Myotonic Dystrophy Family Registry

RecruitingOBSERVATIONAL
Enrollment

3,500

Participants

Timeline

Start Date

February 28, 2013

Primary Completion Date

February 28, 2030

Study Completion Date

February 28, 2030

Conditions
Myotonic DystrophyCongenital Myotonic DystrophyMyotonic Dystrophy 1Myotonic Dystrophy 2Dystrophia MyotonicaDystrophia Myotonica 1Dystrophia Myotonica 2Myotonia DystrophicaMyotonic Dystrophy, CongenitalMyotonic Myopathy, ProximalPROMM (Proximal Myotonic Myopathy)Proximal Myotonic MyopathySteinert DiseaseSteinert Myotonic DystrophySteinert's DiseaseMyotonia Atrophica
Interventions
OTHER

Patient-entered data

This registry provides patient-entered data for future clinical trial and study use.

Trial Locations (1)

94612

RECRUITING

Myotonic Dystrophy Foundation, Oakland

All Listed Sponsors
lead

Myotonic Dystrophy Foundation

OTHER

NCT02398786 - Myotonic Dystrophy Family Registry | Biotech Hunter | Biotech Hunter