A Natural History Study of Fibrodysplasia Ossificans Progressiva (FOP)

Queensland University of Technology (QUT) Institute of Health and Biomedical Innovation (IHBI), Woolloongabba

University of Pennsylvania, Center for FOP & Related Bone Disorders, Philadelphia

University of California San Francisco, Division of Endocrinology and Metabolism, San Francisco

Hospital Italiano de Buenos Aires, Department of Pediatrics, Buenos Aires

Hôpital Necker-Enfants Malades, Department of Genetics, Paris

Gaslini Institute, Unit of Rare Diseases, Department of Pediatrics, Genoa

The Royal National Orthopaedic Hospital, Brockley Hill, Stanmore