The Dystonia Coalition Natural History and Biospecimen Repository for Isolated Dystonias

CompletedOBSERVATIONAL
Enrollment

3,265

Participants

Timeline

Start Date

January 31, 2011

Primary Completion Date

September 30, 2020

Study Completion Date

September 30, 2020

Conditions
Dystonia
Trial Locations (42)

10003

Mount Sinai Beth Israel, New York

10029

Mount Sinai Medical Center, New York

14618

University of Rochester, Rochester

19107

University of Pennsylvania, Parkinson's Disease and Movement Disorders Center, Philadelphia

20892

National Institutes of Health, Bethesda

21075

Parkinson's and Movement Disorders Center of Maryland, Elkridge

21201

University of Maryland, Baltimore

21287

Johns Hopkins University, Baltimore

22807

James Madison University, Harrisonburg

23298

Virginia Commonwealth University, Richmond

23562

University Hospital of Schleswig-Holstein, Lübeck

27157

Wake Forest, Winston-Salem

30322

Emory University, Atlanta

32611

University of Florida, Gainesville, Gainesville

35233

University of Alabama, Birmingham, Birmingham

38163

University of Tennessee, Memphis

45219

University of Cincinnati, Cincinnati

52242

University of Iowa, Iowa City

53226

Medical College of Wisconsin, Milwaukee

58103

Sanford Health - Fargo, Fargo

60612

Rush University, Chicago

60637

University of Chicago, Chicago

63110

Washington University in St. Louis, St Louis

72708

Parkinson's and Movement Disorders Institute, Fountain Valley

75390

University of Texas, Southwestern, Dallas

77030

Baylor College of Medicine, Houston

Houston Methodist Neurological Institute, Houston

University of Texas, Houston

80045

University of Colorado, Denver, Denver

85259

Mayo Clinic, Arizona, Scottsdale

87113

University of New Mexico, Albuquerque

92037

University of California, San Diego, La Jolla

98034

Booth Gardner Parkinson's Care Center, Kirkland

02215

Beth Israel Deaconess Medical Center, Boston

01805

Lahey Hospital and Medical Center, Burlington

Unknown

Westmead Hospital, Westmead

Hopital de la Salpetriere, Paris

University of Rome, Rome

T6G 2B7

University of Alberta, Edmonton

MST 258

Toronto Western Hospital, Toronto

H2C 4M1

Centre Hospitalier de l'Universite de Montreal, Montreal

WC1N 3BG

University College London Institute of Neurology, London

Sponsors

Collaborators (1)

All Listed Sponsors
collaborator

National Institute of Neurological Disorders and Stroke (NINDS)

NIH

collaborator

Office of Rare Diseases (ORD)

NIH

collaborator

Allergan

INDUSTRY

collaborator

Dystonia Study Group

OTHER

lead

Emory University

OTHER