NCT01322165View on ClinicalTrials.gov

National Registry of Genetically Triggered Thoracic Aortic Aneurysms and Cardiovascular Conditions

CompletedOBSERVATIONAL
Enrollment

3,706

Participants

Timeline

Start Date

November 30, 2007

Primary Completion Date

September 30, 2015

Study Completion Date

September 30, 2016

Conditions
Marfan SyndromeTurner SyndromeEhlers-Danlos SyndromeLoeys-Dietz SyndromeFBN1, TGFBR1, TGFBR2, ACTA2 or MYH11 Genetic MutationBicuspid Aortic Valve Without Known Family HistoryBicuspid Aortic Valve With Family HistoryBicuspid Aortic Valve With CoarctationFamilial Thoracic Aortic Aneurysm and DissectionsShprintzen-Goldberg SyndromeOther Aneur/Diss of Thoracic Aorta Not Due to Trauma, <50yoOther Congenital Heart Disease
Trial Locations (7)

10021

The New York Presbyterian Hospital-Weill Cornell Medical Center, New York

21287

Johns Hopkins University, Baltimore

77030

Baylor College of Medicine, Houston

University of Texas Medical School at Houston, Houston

96813

Queens Medical Center, Honolulu

97239

Oregon Health & Science University, Portland

19104-4283

University of Pennsylvania School of Medicine, Philadelphia

All Listed Sponsors
collaborator

National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS)

NIH

lead

National Heart, Lung, and Blood Institute (NHLBI)

NIH

NCT01322165 - National Registry of Genetically Triggered Thoracic Aortic Aneurysms and Cardiovascular Conditions | Biotech Hunter | Biotech Hunter