Genotype and Phenotype Correlation in Hereditary Thrombotic Thrombocytopenic Purpura (Upshaw-Schulman Syndrome)

RecruitingOBSERVATIONAL
Enrollment

450

Participants

Timeline

Start Date

October 31, 2006

Primary Completion Date

October 31, 2030

Study Completion Date

October 31, 2030

Conditions
Thrombotic Thrombocytopenic PurpuraCongenital Thrombotic Thrombocytopenic PurpuraFamilial Thrombotic Thrombocytopenic PurpuraThrombotic Thrombocytopenic Purpura, CongenitalUpshaw-Schulman Syndrome
Interventions
OTHER

Observation

No interventions planned: treatment of patients at the discretion of the treating/responsible physician

Trial Locations (7)

3010

RECRUITING

University Clinic of Hematology and Central Hematology Laboratory, Bern University Hospital and the University of Bern, Inselspital, Bern

73126-0901

RECRUITING

University of Oklahoma Health Sciences Center, Department of Medicine, PO Box 26901, Oklahoma City

A-1090

RECRUITING

Medical University of Vienna, Department of Medicine 1, Div. Hematology and Hemostasis Waehringer Guertel 18-20, Vienna

CZ-12820

RECRUITING

Institute of Hematology and Blood Transfusion, Coagulation Laboratory, U nemocnice 1, Prague

D-20246

NOT_YET_RECRUITING

University Medical Center Hamburg-Eppendorf, Department of Pediatric Hematology and Oncology, Martinistr 52, Hamburg

634-8522

RECRUITING

Nara Medical University, Department of Blood Transfusion Medicine, Shijyo-cho 840, Kashihara

NO-7006

RECRUITING

Trondheim University St Olavs Hospital, Department of Hematology, PO Box 3250 Sluppen, Trondheim

All Listed Sponsors
collaborator

Swiss National Science Foundation

OTHER

collaborator

Mach Gaensslen Foundation

OTHER

collaborator

Baxalta Innovations GmbH, Wien, Austria

UNKNOWN

lead

Insel Gruppe AG, University Hospital Bern

OTHER