A Natural History Study of the Gangliosidoses

RecruitingOBSERVATIONAL
Enrollment

52

Participants

Timeline

Start Date

December 31, 2010

Primary Completion Date

March 1, 2027

Study Completion Date

March 1, 2027

Conditions
Tay-Sachs DiseaseSandhoff DiseaseLate Onset Tay-Sachs DiseaseGM1 GangliosidosisGM2 Gangliosidosis
Trial Locations (1)

55455

RECRUITING

University of Minnesota - Pediatric Genetics and Metabolism, Minneapolis

All Listed Sponsors
collaborator

Rare Diseases Clinical Research Network

NETWORK

collaborator

National Center for Advancing Translational Sciences (NCATS)

NIH

collaborator

National Institute of Neurological Disorders and Stroke (NINDS)

NIH

collaborator

National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK)

NIH

collaborator

Lysosomal Disease Network

OTHER

lead

University of Minnesota

OTHER

NCT00668187 - A Natural History Study of the Gangliosidoses | Biotech Hunter | Biotech Hunter