Pompe Pregnancy Sub-Registry

RecruitingOBSERVATIONAL
Enrollment

20

Participants

Timeline

Start Date

June 18, 2007

Primary Completion Date

January 31, 2034

Study Completion Date

January 31, 2034

Conditions
Glycogen Storage Disease Type II (GSD-II)Pompe Disease (Late-onset)Glycogenesis 2 Acid Maltase Deficiency
Trial Locations (26)

9000

RECRUITING

Investigational Site Number : 056001, Ghent

10000

RECRUITING

Investigational Site Number : 1910001, Zagreb

RECRUITING

Investigational Site Number : 1910002, Zagreb

10016

RECRUITING

New York University School Of Medicine- Site Number : 840040, New York

10029

RECRUITING

Mt. Sinai School of Medicine- Site Number : 840005, New York

12808

RECRUITING

Investigational Site Number : 2030001, Prague

16147

RECRUITING

Investigational Site Number : 380004, Genova

20133

RECRUITING

Investigational Site Number : 380007, Milan

22030

RECRUITING

O&O Alpan, LLC- Site Number : 840025, Fairfax

25123

RECRUITING

Investigational Site Number : 380008, Brescia

27100

RECRUITING

Investigational Site Number : 380003, Pavia

27710

RECRUITING

Duke University Medical Center Genetics Dept- Site Number : 840037, Durham

30322

RECRUITING

Emory University School Of Medicine- Site Number : 840060, Atlanta

35128

RECRUITING

Investigational Site Number : 380002, Padua

RECRUITING

Investigational Site Number : 380011, Padua

43017

RECRUITING

LSD Data Registry Site LLC- Site Number : 840094, Dublin

46202

RECRUITING

Indianapolis University School of Medicine- Site Number : 840027, Indianapolis

49503

RECRUITING

Spectrum for Health- Site Number : 840019, Grand Rapids

50141

RECRUITING

Investigational Site Number : 380005, Florence

85013

RECRUITING

Barrow Neurol Group- Site Number : 840087, Phoenix

97239

COMPLETED

Oregon Health and Science University- Site Number : 840095, Portland

98125

RECRUITING

Investigational Site Number : 380013, Messina

09126

RECRUITING

Investigational Site Number : 380006, Cagliari

Unknown

RECRUITING

Investigational Site Number : 380009, Monza

RECRUITING

Investigational Site Number : 380012, Roma

00165

RECRUITING

Investigational Site Number : 380015, Roma

All Listed Sponsors
lead

Genzyme, a Sanofi Company

INDUSTRY