1,046
Participants
Start Date
April 30, 2006
Primary Completion Date
December 31, 2019
Study Completion Date
December 31, 2019
University of Pittsburgh, Pittsburgh
University of Pennsylvania, Philadelphia
Cleveland Clinic Foundation, Cleveland
Mayo Clinic, Rochester
University of Utah, Salt Lake City
Boston University School of Medicine, Boston
St. Joseph's Healthcare, Hamilton
Mount Sinai Hospital, Toronto
Office of Rare Diseases (ORD)
NIH
National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS)
NIH
Rare Diseases Clinical Research Network
NETWORK
University of Pennsylvania
OTHER