Longitudinal Study of Urea Cycle Disorders

RecruitingOBSERVATIONAL
Enrollment

1,500

Participants

Timeline

Start Date

February 28, 2006

Primary Completion Date

July 31, 2025

Study Completion Date

July 31, 2026

Conditions
Brain Diseases, Metabolic, InbornAmino Acid Metabolism, Inborn ErrorsUrea Cycle Disorders
Trial Locations (15)

10029

RECRUITING

Icahn School of Medicine at Mount Sinai, New York

19104

RECRUITING

Children's Hospital of Philadelphia, Philadelphia

20010

RECRUITING

Children's National Medical Center, Washington D.C.

44106

RECRUITING

Case Western Medical College, Cleveland

55455

RECRUITING

University of Minnesota, Minneapolis

77030

RECRUITING

Baylor College of Medicine, Houston

80045

RECRUITING

Children's Hospital Colorado, Aurora

90095

RECRUITING

University of California, Los Angeles, Los Angeles

94305

RECRUITING

Stanford University Medical Center, Stanford

97239

RECRUITING

Oregon Health and Science University, Portland

98105

RECRUITING

Children's Hospital and Regional Medical Center, Seattle

02115

RECRUITING

Children's Hospital Boston (UCDC New England Center), Boston

M5G 1X8

RECRUITING

The Hospital for Sick Children, Toronto

Unknown

RECRUITING

University of Heidelberg, Heidelberg

CH-8032

RECRUITING

University Children's Hospital, Zurich

All Listed Sponsors
collaborator

National Center for Research Resources (NCRR)

NIH

collaborator

Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD)

NIH

collaborator

Rare Diseases Clinical Research Network

NETWORK

lead

Andrea Gropman

OTHER