Fabry Disease Registry & Pregnancy Sub-registry

RecruitingOBSERVATIONAL
Enrollment

9,000

Participants

Timeline

Start Date

July 31, 2001

Primary Completion Date

January 31, 2034

Study Completion Date

January 31, 2034

Conditions
Fabry Disease
Trial Locations (276)

100

RECRUITING

Investigational Site Number : 151182, Taipei

112

RECRUITING

Investigational Site Number : 152226, Taipei

333

RECRUITING

Investigational Site Number : 153158, Taoyuan

404

RECRUITING

Investigational Site Number : 151179, Taichung

407

RECRUITING

Investigational Site Number : 151181, Taichung

704

RECRUITING

Investigational Site Number : 153248, Tainan City

710

RECRUITING

Investigational Site Number : 152153, Tainan City

807

COMPLETED

Investigational Site Number : 152244, Kaohsiung City

833

RECRUITING

Investigational Site Number : 152246, Kaohsiung City

1000

RECRUITING

Investigational Site Number : 608001, Manila

1070

RECRUITING

Investigational Site Number : 153001, Brussels

1090

RECRUITING

Investigational Site Number : 0560008, Brussels

1191

RECRUITING

Investigational Site Number : 3480002, Budapest

1200

RECRUITING

Investigational Site Number : 150517, Brussels

1280

COMPLETED

Investigational Site Number : 153172, Buenos Aires

1425

COMPLETED

Investigational Site Number : 153032, Ciudad Autónoma de Buenos Aires

1431

COMPLETED

Investigational Site Number : 153169, Sofia

1629

COMPLETED

Investigational Site Number : 153130, Buenos Aires

1680

ACTIVE_NOT_RECRUITING

Investigational Site Number : 100001, Sofia

2020

RECRUITING

Investigational Site Number : 150722, Antwerp

RECRUITING

Investigational Site Number : 153133, Antwerp

2100

COMPLETED

Investigational Site Number : 151229, København Ø

2115

RECRUITING

Boston Children's Hospital- Site Number : 840092, Boston

2145

RECRUITING

Investigational Site Number : 036013, Westmead

RECRUITING

Investigational Site Number : 151069, Westmead

3000

RECRUITING

Investigational Site Number : 032004, Santa Fe

RECRUITING

Investigational Site Number : 151668, Leuven

3050

RECRUITING

Investigational Site Number : 153040, Parkville

4000

RECRUITING

Investigational Site Number : 154275, Liège

4029

RECRUITING

Investigational Site Number : 153063, Brisbane

4100

RECRUITING

Investigational Site Number : 153100, Seraing

4281

RECRUITING

Investigational Site Number : 3480003, Létavértes

4700

RECRUITING

Investigational Site Number : 153194, Catamarca

5000

RECRUITING

Investigational Site Number : 151002, Adelaide

6000

RECRUITING

Investigational Site Number : 153090, Perth

7623

RECRUITING

Investigational Site Number : 3480005, Pécs

8003

RECRUITING

Investigational Site Number : 154123, Barcelona

9400

RECRUITING

Investigational Site Number : 3480004, Sopron

10000

RECRUITING

Investigational Site Number : 1910002, Zagreb

10016

RECRUITING

New York University School Of Medicine- Site Number : 840040, New York

10029

RECRUITING

Icahn School of Medicine at Mount Sinai- Site Number : 840080, New York

10126

RECRUITING

Investigational Site Number : 380011, Torino

10400

RECRUITING

Investigational Site Number : 764003, Bangkok

10449

RECRUITING

Investigational Site Number : 152321, Taipei

10595

RECRUITING

New York Medical College- Site Number : 840039, Valhalla

10700

RECRUITING

Investigational Site Number : 764004, Bangkok

11030

RECRUITING

Northwell Health- Site Number : 840102, Manhasset

12808

ACTIVE_NOT_RECRUITING

Investigational Site Number : 153126, Prague

13210

RECRUITING

State University of New York- Site Number : 840052, Syracuse

13353

ACTIVE_NOT_RECRUITING

Investigational Site Number : 153013, Berlin

14642

COMPLETED

University of Rochester Medical Center SOM- Site Number : 840105, Rochester

15006

COMPLETED

Investigational Site Number : 154146, A Coruña

COMPLETED

Investigational Site Number : 154159, A Coruña

15224

RECRUITING

University of Pittsburgh- Site Number : 840023, Pittsburgh

16147

RECRUITING

Investigational Site Number : 380005, Genova

16247

RECRUITING

Investigational Site Number : 154273, Suwon

17033

RECRUITING

Penn State University Medical Center-Neurology- Site Number : 840104, Hershey

17176

RECRUITING

Investigational Site Number : 151484, Stockholm

17822

RECRUITING

Geisinger- Site Number : 840111, Danville

19104

RECRUITING

Children's Hospital of Philadelphia HUP Medical Genetics- Site Number : 840089, Philadelphia

20010

RECRUITING

Children's National Medical Center- Site Number : 840067, Washington D.C.

20142

COMPLETED

Investigational Site Number : 380009, Milan

20162

COMPLETED

Investigational Site Number : 380006, Milan

20521

ACTIVE_NOT_RECRUITING

Investigational Site Number : 153024, Turku

20900

RECRUITING

Investigational Site Number : 380010, Monza (MB)

21000

RECRUITING

Investigational Site Number : 6880001, Novi Sad

22030

RECRUITING

O&O Alpan, LLC- Site Number : 840025, Fairfax

22908

COMPLETED

University of Virginia School of Medicine-Pediatrics- Site Number : 840078, Charlottesville

23142

RECRUITING

Investigational Site Number : 151534, New Taipei City

23507

COMPLETED

Children's Hospital of the Kings Daughters- Site Number : 840072, Norfolk

27710

RECRUITING

Duke University Medical Center Genetics Dept- Site Number : 840045, Durham

28232

RECRUITING

Carolinas Medical Center- Site Number : 840065, Charlotte

29605

RECRUITING

Greenwood Genetcs- Site Number : 840055, Greenville

30033

RECRUITING

Emory University School of Medicine- Human Genetics- Site Number : 840060, Decatur

32207

RECRUITING

University of Florida Pediatrics Genetics- Site Number : 840121, Jacksonville

32610

RECRUITING

University of Florida Dept of Genetics- Site Number : 840083, Gainesville

33065

RECRUITING

University Hematology Oncology- Site Number : 840075, Coral Springs

33076

ACTIVE_NOT_RECRUITING

Investigational Site Number : 250005, Bordeaux

33100

RECRUITING

Investigational Site Number : 380001, Udine

33136

RECRUITING

University Of Miami SOM- Site Number : 840006, Miami

33606

RECRUITING

University of Florida-Genetics- Site Number : 840096, Tampa

35294

COMPLETED

University of Alabama Birmingham- Nephrology- Site Number : 840018, Birmingham

RECRUITING

University of Alabama Birmingham- Nephrology- Site Number : 840073, Birmingham

35392

RECRUITING

Investigational Site Number : 154150, Giessen

36061

RECRUITING

Investigational Site Number : 380002, Bassano Del Grappa (VI)

36200

RECRUITING

Investigational Site Number : 153213, Vigo

36424

RECRUITING

Investigational Site Number : 682002, Al Mubarraz

38232

RECRUITING

Vanderbilt University Hospital-Pediatrics- Site Number : 840049, Nashville

40002

RECRUITING

Investigational Site Number : 764005, Khon Kaen

40138

RECRUITING

Investigational Site Number : 380019, Bologna

40202

COMPLETED

University of Louisville- Genetics- Site Number : 840030, Louisville

41126

RECRUITING

Investigational Site Number : 380003, Modena

41345

RECRUITING

Investigational Site Number : 153050, Gothenburg

42270

ACTIVE_NOT_RECRUITING

Investigational Site Number : 250004, Saint-Priest-en-Jarez

43005

RECRUITING

Investigational Site Number : 154136, Tarragona

43017

RECRUITING

LSD Data Registry Site LLC- Site Number : 840094, Dublin

43210

ACTIVE_NOT_RECRUITING

Ohio State University Department of Genetics- Site Number : 840097, Columbus

44106

RECRUITING

University Hospitals Cleveland Medical Center- Site Number : 840119, Cleveland

44195

RECRUITING

Cleveland Clinic Foundation Pediatrics- Site Number : 840048, Cleveland

46202

RECRUITING

Indianapolis University School of Medicine- Site Number : 840027, Indianapolis

47900

COMPLETED

Investigational Site Number : 380007, Rimini

48109

RECRUITING

University of Michigan Pediatrics- Site Number : 840107, Ann Arbor

48149

RECRUITING

Investigational Site Number : 153147, Münster

48201

RECRUITING

Children's Hospital of Michigan- Site Number : 840066, Detroit

48903

COMPLETED

Investigational Site Number : 154135, Barakaldo

49503

COMPLETED

Spectrum for Health- Site Number : 840019, Grand Rapids

49525

RECRUITING

Infusion Associates- Site Number : 840050, Grand Rapids

50134

RECRUITING

Investigational Site Number : 380004, Florence

50141

RECRUITING

Investigational Site Number : 380013, Florence

50406

ACTIVE_NOT_RECRUITING

Investigational Site Number : 153106, Tartu

50586

RECRUITING

Investigational Site Number : 458001, Jalan Pahang

50612

COMPLETED

Investigational Site Number : 153178, Yangsan

TERMINATED

Investigational Site Number : 154208, Yangsan

51000

COMPLETED

Investigational Site Number : 1910001, Rijena

52242

RECRUITING

University of Iowa- Site Number : 840032, Iowa City

53226

RECRUITING

Children's Hospital of Wisconsin-Pediatrics- Site Number : 840054, Milwaukee

55404

RECRUITING

Children's Health Care- Site Number : 840114, Minneapolis

COMPLETED

Children's Hospital and Clinics of Minnesota- Site Number : 840046, Minneapolis

55455

RECRUITING

University of Minnesota Medical Center Pediatrics- Site Number : 840076, Minneapolis

59037

ACTIVE_NOT_RECRUITING

Investigational Site Number : 250007, Lille

59100

RECRUITING

Investigational Site Number : 458002, Kuala Lumpur

59601

COMPLETED

Shodair Children's Hospital- Site Number : 840090, Helena

60611

RECRUITING

Ann and Robert Lurie Children's Hospital- Site Number : 840013, Chicago

60612

RECRUITING

Rush University Medical Center Genetics- Site Number : 840079, Chicago

63110

RECRUITING

Washington University of St. Louis- Site Number : 840100, St Louis

65212

RECRUITING

University of Missouri Health System Department of Genetics- Site Number : 840031, Columibia

66160

RECRUITING

University of Kansas Medical Center- Site Number : 840071, Kansas City

67000

RECRUITING

Investigational Site Number : 250009, Strasbourg

68198

RECRUITING

University of Nebraska Medical Center- Pediatrics- Site Number : 840084, Omaha

69677

ACTIVE_NOT_RECRUITING

Investigational Site Number : 250002, Bron

70112

COMPLETED

Tulane University Medical Center- Site Number : 840001, New Orleans

70809

RECRUITING

Ochsner Medical Center- Site Number : 840120, Baton Rouge

72202

RECRUITING

Arkansas Childrens Hospital- Site Number : 840109, Little Rock

72205

RECRUITING

University of Arkansas for Medical Sciences- Site Number : 840113, Little Rock

75226

RECRUITING

Baylor Research Center- Site Number : 840058, Dallas

76104

RECRUITING

Cook Children's Health Care System- Site Number : 840024, Fort Worth

80045

RECRUITING

University of Colorado at Denver Genetics- Site Number : 840068, Aurora

80130

RECRUITING

Investigational Site Number : 380008, Napoli

81362

COMPLETED

Investigational Site Number : 153088, Kaohsiung City

83340

COMPLETED

Investigational Site Number : 703001, Bratislava

84132

RECRUITING

University of Utah Department of Medical Genetics- Site Number : 840043, Salt Lake City

85013

RECRUITING

Phoenix Children's Hospital- Site Number : 840003, Phoenix

85724

RECRUITING

University of Arizona- Site Number : 840015, Tucson

89109

RECRUITING

Children's Specialty Center of Nevada- Site Number : 840008, Las Vegas

90027

RECRUITING

Southern California Permanente Medical Group- Site Number : 840108, Los Angeles

90033

COMPLETED

USC Health Sciences Center Dept of Genetics- Site Number : 840082, Los Angeles

90095

RECRUITING

UCLA School Of Medicine- Site Number : 840088, Los Angeles

92093

COMPLETED

University of California at San Diego- Site Number : 840007, San Diego

92380

ACTIVE_NOT_RECRUITING

Investigational Site Number : 250001, Garches

92697

RECRUITING

University of California at Irvine- Site Number : 840036, Irvine

92868

RECRUITING

Children's Hospital of Orange County- Site Number : 840074, Orange

94305

RECRUITING

Stanford Unviersity MC Dept of Genetics- Site Number : 840022, Palo Alto

94609

COMPLETED

Children's Hospital Oakland- Site Number : 840029, Oakland

95817

RECRUITING

UC Davis MIND Institute- Site Number : 840010, Sacramento

95825

COMPLETED

Kaiser Permanente Hospital- Site Number : 840042, Sacramento

97019

RECRUITING

Investigational Site Number : 380014, Vittoria (RG)

97080

ACTIVE_NOT_RECRUITING

Investigational Site Number : 153011, Würzburg

97239

RECRUITING

Oregon Health and Science University- Site Number : 840116, Portland

TERMINATED

Oregon Health and Scinece University- Site Number : 840038, Portland

98105

RECRUITING

Seattle Children's Hospital- Site Number : 840028, Seattle

98195

RECRUITING

University Of Washington Medical Center- Site Number : 840059, Seattle

98415

RECRUITING

Multicare Health System ¿ Mary Bridge Childrens Hospital- Site Number : 840115, Tacoma

197341

RECRUITING

Investigational Site Number : 643002, Saint-Peterburg

200025

RECRUITING

Investigational Site Number : 1560001, Shanghai

210008

RECRUITING

Investigational Site Number : 1560004, Nanjing

229899

RECRUITING

Investigational Site Number : 702001, Singapore

250001

RECRUITING

Investigational Site Number : 1560002, Jinan

310003

ACTIVE_NOT_RECRUITING

Investigational Site Number : 1560003, Hangzhou

380015

RECRUITING

Investigational Site Number : 356003, Ahmedabad

400006

COMPLETED

Investigational Site Number : 153081, Cluj-Napoca

500026

RECRUITING

Investigational Site Number : 3560004, Secunderabad

603005

RECRUITING

Investigational Site Number : 643003, Nizhny Novgorod

632004

RECRUITING

Investigational Site Number : 356002, Vellore

700017

RECRUITING

Investigational Site Number : 356001, Kolkata

1710228

ACTIVE_NOT_RECRUITING

Investigational Site Number : 152001, Coquimbo

19900280

ACTIVE_NOT_RECRUITING

Serviço de Terapia Renal de Ourinhos- Site Number : 076011, Ourinhos

44001328

ACTIVE_NOT_RECRUITING

Clínica Senhor do Bonfim LTDA- Site Number : 076008, Feira de Santana

Unknown

RECRUITING

University of California at San Francisco- Site Number : 840051, San Francisco

COMPLETED

John Hopkins- Site Number : 840044, Baltimore

TERMINATED

Cooper Health Center- Site Number : 840098, Camden

RECRUITING

Cincinnati Children's Hospital-Genetics- Site Number : 840033, Cincinnati

RECRUITING

Children's Hospital of Philadelphia- Site Number : 840034, Philadelphia

ACTIVE_NOT_RECRUITING

Investigational Site Number : 152004, Antofagasta

COMPLETED

Investigational Site Number : 152003, Iquique

TERMINATED

Investigational Site Number : 152002, Santiago

ACTIVE_NOT_RECRUITING

Investigational Site Number : 152005, Vallenar

TERMINATED

Investigational Site Number : 153165, Beijing

TERMINATED

Investigational Site Number : 153163, Shanghai

ACTIVE_NOT_RECRUITING

Investigational Site Number : 170001, Bogotá

RECRUITING

Investigational Site Number : 344001, Kowloon

RECRUITING

Investigational Site Number : 360001, Jakarta

TERMINATED

Investigational Site Number : 151171, Amsterdam

TERMINATED

Investigational Site Number : 153004, Amsterdam

RECRUITING

Investigational Site Number : 153141, Bergen

RECRUITING

Investigational Site Number : 643001, Moscow

RECRUITING

Investigational Site Number : 154246, Busan

RECRUITING

Investigational Site Number : 153191, Daejeon

TERMINATED

Investigational Site Number : 153228, Jeju City

RECRUITING

Investigational Site Number : 153188, Seoul

RECRUITING

Investigational Site Number : 153212, Seoul

RECRUITING

Investigational Site Number : 153222, Seoul

RECRUITING

Investigational Site Number : 154093, Chiayi City

RECRUITING

Investigational Site Number : 152152, Hualien City

RECRUITING

Investigational Site Number : 151500, Putz City, Chia-yi

RECRUITING

Investigational Site Number : 764001, Bangkok

RECRUITING

Investigational Site Number : 154212, Hanoi

06520

RECRUITING

Yale - Site Number : 840047, New Haven

04102

RECRUITING

Maine Medical Center Pediatrics- Site Number : 840064, Portland

02114

RECRUITING

Massachusetts General Hospital-Genetics- Site Number : 840062, Boston

02115

RECRUITING

Brigham and Women's Hospital-Neurology- Site Number : 840103, Boston

01199

RECRUITING

Baystate Health- Site Number : 840002, Springfield

07601

RECRUITING

Joseph M. Sanzari Children's Hospital- Site Number : 840101, Hackensack

07962

RECRUITING

Atlantic Health System- Site Number : 840099, Morristown

08901

RECRUITING

St. Peter's University Hospital- Site Number : 840016, New Brunswick

07503

RECRUITING

St. Joseph's Children's Hospital- Site Number : 840057, Paterson

10029-7494

RECRUITING

Metropolitan Hospital Center- Site Number : 840110, New York

43205-2664

RECRUITING

Nationwide Children's Hospital- Site Number : 840091, Columbus

02903

COMPLETED

Rhode Island Hospital Genetics- Site Number : 840053, Providence

F5300ALS

COMPLETED

Investigational Site Number : 032005, La Rioja

71950-904

ACTIVE_NOT_RECRUITING

Medicordis- Site Number : 076009, Brasília

78025-000

ACTIVE_NOT_RECRUITING

Hospital Geral e Maternidade de Cuiabá- Site Number : 076006, Cuiabá

38408-028

ACTIVE_NOT_RECRUITING

CTDR - Centro de Tratamento de Doenças Renais EIRELI- Site Number : 076007, Uberlândia

80250-070

ACTIVE_NOT_RECRUITING

Instituto do Rim do Paraná- Site Number : 076004, Curitiba

50070-550

ACTIVE_NOT_RECRUITING

Instituto de Medicina Integral Professor Fernando Figueira - IMIP - Site Number : 076005, Recife

99950-000

ACTIVE_NOT_RECRUITING

Saúde Center Clínica - Clínica Médica Nossa Senhora de Fátima - Site Number : 076002, Tapejara

88040-900

ACTIVE_NOT_RECRUITING

Hospital Universitário Professor Polydoro Ernani de São Thiago - UFSC- Site Number : 076012, Florianópolis

13034-685

ACTIVE_NOT_RECRUITING

Hospital e Maternidade Celso Pierro - PUC-Campinas- Site Number : 076013, Campinas

04020-041

ACTIVE_NOT_RECRUITING

Instituto de Genética e Erros Inatos do Metabolismo- Site Number : 076001, São Paulo

T2E 7Z4

ACTIVE_NOT_RECRUITING

Investigational Site Number : 124014, Calgary

TG62B7

RECRUITING

Investigational Site Number : 124002, Edmonton

V5Z1M9

ACTIVE_NOT_RECRUITING

Investigational Site Number : 124010, Vancouver

V6H3N1

COMPLETED

Investigational Site Number : 124011, Vancouver

R3A1R9

RECRUITING

Investigational Site Number : 124019, Winnipeg

E1C 2Z3

ACTIVE_NOT_RECRUITING

Investigational Site Number : 124022, Moncton

A1B 3V6

RECRUITING

Investigational Site Number : 124023, St. John's

b3h1v8

RECRUITING

Investigational Site Number : 124008, Halifax

K7L2V7

TERMINATED

Investigational Site Number : 124005, Kingston

N6A 5W9

RECRUITING

Investigational Site Number : 124021, London

M5G 1X8

ACTIVE_NOT_RECRUITING

Investigational Site Number : 124006, Toronto

M5T3L9

ACTIVE_NOT_RECRUITING

Investigational Site Number : 124009, Toronto

H4J1C5

ACTIVE_NOT_RECRUITING

Investigational Site Number : 124013, Montreal

J1H5N4

ACTIVE_NOT_RECRUITING

Investigational Site Number : 124001, Sherbrooke

DK-2100

COMPLETED

Investigational Site Number : 153041, Copenhagen

00168

RECRUITING

Investigational Site Number : 380012, Roma

650-0017

ACTIVE_NOT_RECRUITING

Investigational Site Number : 392007, Kobe

783-0043

RECRUITING

Investigational Site Number : 153201, Nangoku-shi

545-8585

COMPLETED

Investigational Site Number : 153205, Abeno-ku

266-0007

RECRUITING

Investigational Site Number : 153217, Chiba

951-8520

RECRUITING

Investigational Site Number : 392006, Niigata

157-8535

RECRUITING

Investigational Site Number : 153204, Tokyo

08406

RECRUITING

Investigational Site Number : 154244, Vilnius

08661

RECRUITING

Investigational Site Number : 154652, Vilnius

Callao02

RECRUITING

Investigational Site Number : 604002, Callao

04-730

RECRUITING

Investigational Site Number : 150575, Warsaw

1649-035

RECRUITING

Investigational Site Number : 620005, Lisbon

4200-319

RECRUITING

Investigational Site Number : 620001, Porto

022328

RECRUITING

Investigational Site Number : 154099, Bucharest

RECRUITING

Investigational Site Number : 154164, Bucharest

SI2380

RECRUITING

Investigational Site Number : 705001, Slovenj Gradec

03080

RECRUITING

Investigational Site Number : 153180, Seoul

RECRUITING

Investigational Site Number : 153196, Seoul

04401

COMPLETED

Investigational Site Number : 153192, Seoul

05505

RECRUITING

Investigational Site Number : 151149, Seoul

08035

RECRUITING

Investigational Site Number : 153237, Barcelona

RECRUITING

Investigational Site Number : 154147, Barcelona

08036

RECRUITING

Investigational Site Number : 154204, Barcelona

08025

RECRUITING

Investigational Site Number : 153067, Barcelona

08907

RECRUITING

Investigational Site Number : 153077, Barcelona

CB2 2QQ

RECRUITING

Investigational Site Number : 151340, Cambridge

B15 2TH

RECRUITING

Investigational Site Number : 152287, Birmingham

NW1 2BU

RECRUITING

Investigational Site Number : 151646, London

WC1N 3JH

RECRUITING

Investigational Site Number : 150303, London

M6 8HD

RECRUITING

Investigational Site Number : 152361, Salford

BT97AB

RECRUITING

Investigational Site Number : 154196, Belfast

NW32QG

RECRUITING

Investigational Site Number : 151123, London

M13 0JE

RECRUITING

Investigational Site Number : 150455, Manchester

All Listed Sponsors
lead

Genzyme, a Sanofi Company

INDUSTRY