Mucopolysaccharidosis I (MPS I) Registry

RecruitingOBSERVATIONAL
Enrollment

1,500

Participants

Timeline

Start Date

November 20, 2003

Primary Completion Date

January 31, 2034

Study Completion Date

January 31, 2034

Conditions
Mucopolysaccharidosis I (MPS I)
Trial Locations (180)

100

RECRUITING

Investigational Site Number : 151182, Taipei

333

RECRUITING

Investigational Site Number : 153158, Taoyuan

404

RECRUITING

Investigational Site Number : 151179, Taichung

704

RECRUITING

Investigational Site Number : 153248, Tainan City

710

RECRUITING

Investigational Site Number : 152153, Tainan City

807

RECRUITING

Investigational Site Number : 152244, Kaohsiung City

833

RECRUITING

Investigational Site Number : 152246, Kaohsiung City

1000

RECRUITING

Investigational Site Number : 608001, Manila

1090

RECRUITING

Investigational Site Number : 150944, Brussels

1200

RECRUITING

Investigational Site Number : 150517, Brussels

1425

RECRUITING

Investigational Site Number : 153032, Ciudad Autónoma de Buenos Aires

1629

RECRUITING

Investigational Site Number : 153130, Buenos Aires

2100

RECRUITING

Investigational Site Number : 151229, København Ø

2115

RECRUITING

Boston Children's Hospital- Site Number : 840093, Boston

2145

RECRUITING

Investigational Site Number : 151069, Westmead

3000

RECRUITING

Investigational Site Number : 151668, Leuven

4101

RECRUITING

Investigational Site Number : 152096, Brisbane

7623

RECRUITING

Investigational Site Number : 3480005, Pécs

8800

RECRUITING

Investigational Site Number : 154008, Roeselare

10000

RECRUITING

Investigational Site Number : 1910001, Zagreb

10016

RECRUITING

New York University School Of Medicine- Site Number : 840040, New York

10400

COMPLETED

Investigational Site Number : 764002, Bangkok

RECRUITING

Investigational Site Number : 764003, Bangkok

10449

RECRUITING

Investigational Site Number : 152321, Taipei

10700

RECRUITING

Investigational Site Number : 764004, Bangkok

11030

RECRUITING

Northwell Health- Site Number : 840102, Manhasset

12622

RECRUITING

Investigational Site Number : 818002, Cairo

12808

RECRUITING

Investigational Site Number : 150659, Prague

13210

RECRUITING

State University of New York- Site Number : 840052, Syracuse

13385

COMPLETED

Investigational Site Number : 250002, Marseille

14642

RECRUITING

University of Rochester Medical Center SOM- Site Number : 840105, Rochester

15224

RECRUITING

University of Pittsburgh- Site Number : 840023, Pittsburgh

16147

RECRUITING

Investigational Site Number : 380003, Genova

17176

RECRUITING

Investigational Site Number : 7520001, Stockholm

19104

RECRUITING

Children's Hospital of Philadelphia HUP Medical Genetics- Site Number : 840089, Philadelphia

20010

RECRUITING

Children's National Medical Center- Site Number : 840067, Washington D.C.

20142

COMPLETED

Investigational Site Number : 380007, Milan

20246

RECRUITING

Investigational Site Number : 151368, Hamburg

21955

RECRUITING

Investigational Site Number : 682004, Mecca

22908

RECRUITING

University of Virginia School of Medicine-Pediatrics- Site Number : 840078, Charlottesville

23142

RECRUITING

Investigational Site Number : 151534, New Taipei City

23507

ACTIVE_NOT_RECRUITING

Children's Hospital of the Kings Daughters- Site Number : 840072, Norfolk

27710

RECRUITING

Duke University Medical Center Genetics Dept- Site Number : 840037, Durham

29605

RECRUITING

Greenwood Genetcs- Site Number : 840055, Greenville

30033

RECRUITING

Emory University School of Medicine- Human Genetics- Site Number : 840060, Decatur

32207

RECRUITING

University of Florida Pediatrics Genetics- Site Number : 840121, Jacksonville

32216

RECRUITING

The Atwal Clinic- Site Number : 840112, Jacksonville

32610

RECRUITING

University of Florida Dept of Genetics- Site Number : 840083, Gainesville

33076

RECRUITING

Investigational Site Number : 250004, Bordeaux

33100

RECRUITING

Investigational Site Number : 380001, Udine

33136

RECRUITING

University Of Miami SOM- Site Number : 840006, Miami

33612

RECRUITING

Pediatric Endocrine Associates- Site Number : 840017, Tampa

35128

RECRUITING

Investigational Site Number : 380008, Padua

40002

RECRUITING

Investigational Site Number : 764005, Khon Kaen

40202

RECRUITING

University of Louisville- Genetics- Site Number : 840030, Louisville

43017

RECRUITING

LSD Data Registry Site LLC- Site Number : 840094, Dublin

44106

RECRUITING

UHCMC- Site Number : 840119, Cleveland

46202

RECRUITING

Indianapolis University School of Medicine- Site Number : 840027, Indianapolis

48109

RECRUITING

University of Michigan Pediatrics- Site Number : 840107, Ann Arbor

48201

RECRUITING

Children's Hospital of Michigan- Site Number : 840066, Detroit

50141

RECRUITING

Investigational Site Number : 380009, Florence

50586

RECRUITING

Investigational Site Number : 458001, Jalan Pahang

50612

RECRUITING

Investigational Site Number : 153178, Yangsan

RECRUITING

Investigational Site Number : 154148, Yangsan

51353

RECRUITING

Investigational Site Number : 154286, Changwon-si

52242

RECRUITING

University of Iowa- Site Number : 840032, Iowa City

53226

RECRUITING

Children's Hospital of Wisconsin-Pediatrics- Site Number : 840054, Milwaukee

54511

COMPLETED

Investigational Site Number : 250006, Vandœuvre-lès-Nancy

55131

RECRUITING

Investigational Site Number : 150031, Mainz

55404

RECRUITING

Children's Health Care- Site Number : 840114, Minneapolis

55455

RECRUITING

University of Minnesota Medical Center Pediatrics- Site Number : 840076, Minneapolis

59100

RECRUITING

Investigational Site Number : 458002, Kuala Lumpur

60126

COMPLETED

Investigational Site Number : 380002, Ancona

60611

RECRUITING

Ann and Robert Lurie Children's Hospital- Site Number : 840011, Chicago

60612

RECRUITING

Rush University Medical Center Genetics- Site Number : 840079, Chicago

63110

RECRUITING

Washington University of St. Louis- Site Number : 840100, St Louis

68198

RECRUITING

University of Nebraska Medical Center- Pediatrics- Site Number : 840084, Omaha

69677

RECRUITING

Investigational Site Number : 250001, Bron

70121

RECRUITING

Ochsner Medical Center - Site Number : 840120, New Orleans

72202

RECRUITING

Arkansas Childrens Hospital- Site Number : 840109, Little Rock

75015

RECRUITING

Investigational Site Number : 250003, Paris

75226

RECRUITING

Baylor Research Center- Site Number : 840058, Dallas

75571

RECRUITING

Investigational Site Number : 250005, Paris

80045

COMPLETED

Children's Hospital IMD Clinic- Site Number : 840069, Aurora

RECRUITING

University of Colorado at Denver Genetics Site Number : 840068, Aurora

83340

RECRUITING

Investigational Site Number : 703001, Bratislava

84132

RECRUITING

University of Utah Health Hospital- Site Number : 840092, Salt Lake City

85013

RECRUITING

Phoenix Children's Hospital- Site Number : 840003, Phoenix

89109

RECRUITING

Children's Specialty Center of Nevada- Site Number : 840008, Las Vegas

90027

RECRUITING

Southern California Permanente Medical Group- Site Number : 840108, Los Angeles

90033

RECRUITING

USC Health Sciences Center Dept of Genetics- Site Number : 840082, Los Angeles

92093

COMPLETED

University of California at San Diego- Site Number : 840007, San Diego

92408

RECRUITING

Loma Linda University Children's Hospital- Site Number : 840117, San Bernardino

92868

RECRUITING

Children's Hospital of Orange County- Site Number : 840074, Orange

94305

RECRUITING

Stanford Unviersity MC Dept of Genetics- Site Number : 840022, Palo Alto

94609

COMPLETED

Children's Hospital Oakland- Site Number : 840029, Oakland

95817

RECRUITING

UC Davis MIND Institute- Site Number : 840010, Sacramento

97239

RECRUITING

Oregon Health and Science University- Site Number : 840080, Portland

98105

RECRUITING

Seattle Children's Hospital- Site Number : 840028, Seattle

98195

RECRUITING

University Of Washington Medical Center- Site Number : 840059, Seattle

98415

RECRUITING

Multicare Health System ¿ Mary Bridge Childrens Hospital- Site Number : 840115, Tacoma

119571

RECRUITING

Investigational Site Number : 643001, Moscow

125412

RECRUITING

Investigational Site Number : 643002, Moscow

229899

RECRUITING

Investigational Site Number : 702001, Singapore

380015

RECRUITING

Investigational Site Number : 356003, Ahmedabad

400370

RECRUITING

Investigational Site Number : 154177, Cluj-Napoca

500026

RECRUITING

Investigational Site Number : 3560004, Secunderabad

632004

RECRUITING

Investigational Site Number : 356002, Vellore

700000

RECRUITING

Investigational Site Number : 704002, Ho Chi Minh City

700017

RECRUITING

Investigational Site Number : 356001, Kolkata

2687000

RECRUITING

Investigational Site Number : 152001, Talcahuano

11072210

RECRUITING

Investigational Site Number : 4220004, Beirut

22250020

RECRUITING

Instituto Fernandes Figueira - FIOCRUZ- Site Number : 076004, Rio de Janeiro

Unknown

RECRUITING

University of California at San Francisco- Site Number : 840051, San Francisco

RECRUITING

John Hopkins- Site Number : 840044, Baltimore

RECRUITING

Cincinnati Children's Hospital-Genetics- Site Number : 840041, Cincinnati

RECRUITING

Children's Hospital of Philadelphia- Site Number : 840034, Philadelphia

RECRUITING

Investigational Site Number : 152003, Los Ángeles

RECRUITING

Investigational Site Number : 170001, Bogotá

RECRUITING

Investigational Site Number : 818001, Cairo

RECRUITING

Investigational Site Number : 344001, Kowloon

RECRUITING

Investigational Site Number : 360001, Jakarta

RECRUITING

Investigational Site Number : 380004, Cusano Milanino

RECRUITING

Investigational Site Number : 380005, Napoli

RECRUITING

Investigational Site Number : 154225, Kuwait City

COMPLETED

Investigational Site Number : 151171, Amsterdam

RECRUITING

Investigational Site Number : 154264, Lahore

RECRUITING

Investigational Site Number : 154266, Lahore

RECRUITING

Investigational Site Number : 682001, Al Qaţīf

RECRUITING

Investigational Site Number : 153191, Daejeon

RECRUITING

Investigational Site Number : 153225, Jeonnam

RECRUITING

Investigational Site Number : 153212, Seoul

RECRUITING

Investigational Site Number : 153222, Seoul

RECRUITING

Investigational Site Number : 154093, Chiayi City

RECRUITING

Investigational Site Number : 152152, Hualien City

RECRUITING

Investigational Site Number : 151500, Putz City, Chia-yi

RECRUITING

Investigational Site Number : 764001, Bangkok

RECRUITING

Investigational Site Number : 154212, Hanoi

06520

RECRUITING

Yale - Site Number : 840047, New Haven

02114

RECRUITING

Massachusetts General Hospital-Genetics- Site Number : 840062, Boston

01199

RECRUITING

Baystate Health- Site Number : 840002, Springfield

07601

RECRUITING

Joseph M. Sanzari Children's Hospital- Site Number : 840101, Hackensack

07962

RECRUITING

Atlantic Health System- Site Number : 840099, Morristown

08901

RECRUITING

St. Peter's University Hospital- Site Number : 840016, New Brunswick

07503

RECRUITING

St. Joseph's Children's Hospital- Site Number : 840057, Paterson

10029-7494

RECRUITING

Metropolitan Hospital Center- Site Number : 840110, New York

43205-2664

RECRUITING

Nationwide Children's Hospital- Site Number : 840091, Columbus

02903

RECRUITING

Rhode Island Hospital Genetics- Site Number : 840053, Providence

90035-903

RECRUITING

Centro de Pesquisa Clínica Prédio 21, 2o andar Hospital de Clínicas de Porto Alegre- Site Number : 076001, Porto Alegre

13034-685

RECRUITING

Hospital e Maternidade Celso Pierro - PUC-Campinas- Site Number : 076007, Campinas

04020-041

RECRUITING

Instituto de Genética e Erros Inatos do Metabolismo - IGEIM- Site Number : 076002, São Paulo

T2M 0L6

RECRUITING

Investigational Site Number : 124014, Calgary

TG62B7

RECRUITING

Investigational Site Number : 124002, Edmonton

V6H3N1

RECRUITING

Investigational Site Number : 124011, Vancouver

R3A1R9

RECRUITING

Investigational Site Number : 124019, Winnipeg

E1C 2Z3

RECRUITING

Investigational Site Number : 124022, Moncton

N6A 5W9

RECRUITING

Investigational Site Number : 124021, London

M5G 1X8

RECRUITING

Investigational Site Number : 124006, Toronto

H4A3J1

RECRUITING

Investigational Site Number : 124018, Montreal

J1H5N4

RECRUITING

Investigational Site Number : 124001, Sherbrooke

Dublin1

RECRUITING

Investigational Site Number : 154161, Dublin

00165

RECRUITING

Investigational Site Number : 380006, Roma

783-0043

RECRUITING

Investigational Site Number : 392102, Nangoku-shi

157-8535

RECRUITING

Investigational Site Number : 392101, Tokyo

3015 CE

RECRUITING

Investigational Site Number : 152029, Rotterdam

04-730

RECRUITING

Investigational Site Number : 150575, Warsaw

3000-075

RECRUITING

Investigational Site Number : 6200002, Coimbra

05505

RECRUITING

Investigational Site Number : 151149, Seoul

03080

RECRUITING

Investigational Site Number : 153180, Seoul

RECRUITING

Investigational Site Number : 153196, Seoul

04401

RECRUITING

Investigational Site Number : 153192, Seoul

00407

RECRUITING

Investigational Site Number : 151181, Taichung

B15 2TH

RECRUITING

Investigational Site Number : 152287, Birmingham

B46NH

RECRUITING

Investigational Site Number : 154240, Birmingham

G514TF

RECRUITING

Investigational Site Number : 152156, Glasgow

NW1 2BU

RECRUITING

Investigational Site Number : 151646, London

NW32QG

RECRUITING

Investigational Site Number : 151123, London

WC1N 3JH

RECRUITING

Investigational Site Number : 150303, London

M13 9WL

RECRUITING

Investigational Site Number : 150455, Manchester

M6 8HD

RECRUITING

Investigational Site Number : 152361, Salford

All Listed Sponsors
lead

Genzyme, a Sanofi Company

INDUSTRY