NCT00082108View on ClinicalTrials.gov

Myotonic Dystrophy and Facioscapulohumeral Muscular Dystrophy Registry

RecruitingOBSERVATIONAL
Enrollment

3,000

Participants

Timeline

Start Date

September 30, 2000

Primary Completion Date

June 30, 2028

Study Completion Date

June 30, 2028

Conditions
Myotonic DystrophyFacioscapulohumeral Muscular DystrophyMuscular DystrophyMyotonic Dystrophy Type 1Myotonic Dystrophy Type 2Congenital Myotonic DystrophyPROMM (Proximal Myotonic Myopathy)Steinert's DiseaseMyotonic Muscular Dystrophy
Trial Locations (1)

14642

RECRUITING

University of Rochester Medical Center, Department of Neurology, Rochester

All Listed Sponsors
collaborator

National Institute of Neurological Disorders and Stroke (NINDS)

NIH

lead

University of Rochester

OTHER