Description of the Impact of Symptoms on Quality of Life in HHT Disease: DISQUO

CompletedOBSERVATIONAL

Enrollment

185

Participants

Timeline

Start Date

December 1, 2024

Primary Completion Date

December 1, 2024

Study Completion Date

May 1, 2025

Conditions

Hereditary Hemorrhagic Telangiectasia (HHT)

Interventions

OTHER

completion of the QOL-HHT questionnaire

filling in the QOL-HHT questionnaire when they come for consultation

Trial Locations (1)

Hôpital Femme-Mère-Enfant - Centre de référence pour la maladie de Rendu-Osler, Bron

All Listed Sponsors

lead

Hospices Civils de Lyon

OTHER

NCT07191639 - Description of the Impact of Symptoms on Quality of Life in HHT Disease: DISQUO | Biotech Hunter | Biotech Hunter