Evaluation of the Quality of Life and Gynecological Follow-up of Patients Treated for Mayer-Rokitansky-Küster-Hauser (MRKH) Syndrome

Not yet recruitingOBSERVATIONAL
Enrollment

102

Participants

Timeline

Start Date

October 1, 2025

Primary Completion Date

October 1, 2026

Study Completion Date

June 1, 2027

Conditions
Mrkh Syndrome
Interventions
OTHER

Questionnaires

questionnaires: WHOQOL-BREF (Quality of Life Study Questionnaire), FSFI (Female Sexual Function Index), FSDS-R (The Femala sexual distress scale-revised), Rosenberg scale (self-esteem assessment)

OTHER

Semi-directed interview

Semi-directed interview on the treatment pathway and the impact of utero-vaginal aplasia on intimate and personal life

Trial Locations (1)

31059

Service d'Endocrino-gynéco-pédiatrie, Hôpital des Enfants, 330 Avenue de Grande Bretagne, Toulouse

All Listed Sponsors
lead

University Hospital, Toulouse

OTHER

NCT07186764 - Evaluation of the Quality of Life and Gynecological Follow-up of Patients Treated for Mayer-Rokitansky-Küster-Hauser (MRKH) Syndrome | Biotech Hunter | Biotech Hunter