Breaking Silence Through Story: A Narrative Medicine Intervention for Parents of Children With Urogenital Conditions

NARecruitingINTERVENTIONAL
Enrollment

20

Participants

Timeline

Start Date

October 10, 2025

Primary Completion Date

May 31, 2026

Study Completion Date

May 31, 2026

Conditions
DSDHypospadias
Interventions
BEHAVIORAL

Narrative Medicine Journaling Intervention

Participants will complete the GAD-7 anxiety assessment at baseline. They will then receive a physical journal containing 5 structured, therapeutic writing prompts designed to help process emotions related to their child's diagnosis. Prompts focus on processing experiences with diagnosis, addressing uncertainty, coping with stigma, and developing resilience. Parents will be instructed to complete the 5 journal entries, spending 15-20 minutes on each writing session at least once per week. Following completion of the journaling intervention, participants will complete a follow-up GAD-7 assessment and take part in a 30-45 minute qualitative interview to further assess perceived changes in anxiety, stress, and coping strategies, and to gather feedback on potential group-based writing programs.

Trial Locations (1)

02115

RECRUITING

Boston Children's Hospital, Boston

All Listed Sponsors
collaborator

Harvard Catalyst Pilot Grant

UNKNOWN

lead

Sarah Schlegel

OTHER

NCT06989593 - Breaking Silence Through Story: A Narrative Medicine Intervention for Parents of Children With Urogenital Conditions | Biotech Hunter | Biotech Hunter