20
Participants
Start Date
October 10, 2025
Primary Completion Date
May 31, 2026
Study Completion Date
May 31, 2026
Narrative Medicine Journaling Intervention
Participants will complete the GAD-7 anxiety assessment at baseline. They will then receive a physical journal containing 5 structured, therapeutic writing prompts designed to help process emotions related to their child's diagnosis. Prompts focus on processing experiences with diagnosis, addressing uncertainty, coping with stigma, and developing resilience. Parents will be instructed to complete the 5 journal entries, spending 15-20 minutes on each writing session at least once per week. Following completion of the journaling intervention, participants will complete a follow-up GAD-7 assessment and take part in a 30-45 minute qualitative interview to further assess perceived changes in anxiety, stress, and coping strategies, and to gather feedback on potential group-based writing programs.
RECRUITING
Boston Children's Hospital, Boston
Harvard Catalyst Pilot Grant
UNKNOWN
Sarah Schlegel
OTHER