300
Participants
Start Date
March 4, 2025
Primary Completion Date
June 30, 2025
Study Completion Date
June 30, 2025
No intervention
Participants and their caregivers will report home reported outcomes (HRO) data on symptom burden to understand symptom variability and health-related quality of life (HRQoL).
Other treatment
Participants and their caregivers will report HRO data on symptom burden and treatment usage to understand symptom variability and HRQoL.
Iptacopan
Participants and their caregivers will report HRO data on symptom burden and treatment usage to understand symptom variability and HRQoL including those taking iptacopan.
Atrasentan
Participants and their caregivers will report HRO data on symptom burden and treatment usage to understand symptom variability and HRQoL including those taking atrasentan.
RECRUITING
Novartis Investigational site, Boston
Lead Sponsor
Novartis Pharmaceuticals
INDUSTRY