A Palliative Care Model Impact on Knowledge and Attitudes

NARecruitingINTERVENTIONAL
Enrollment

50

Participants

Timeline

Start Date

February 1, 2025

Primary Completion Date

February 1, 2026

Study Completion Date

June 30, 2026

Conditions
Multiple Sclerosis, MS
Interventions
BEHAVIORAL

Palliative care video comprises the conversation and advance directives.

The palliative care video was done in a way that facilitates discussion and minimizes anxiety or any psychological risk/burden. The video is narrated by a young adult who opens with an empathic statement regarding the situation the young adult/adult patient finds themselves in. Then, there is a transition to contemplating what the future might hold and decisions about medical care and introducing the concept of ACP. There is acknowledgment that decision making is difficult, and that the presence of caregivers often helps. There is an explicit statement regarding values and spiritual beliefs and how that might impact decision making. The video then attempts to translate the preceding conversation into actionable medical orders using the most common three-goal framework that is based on the Physician Orders for Life Sustaining Treatment (POLST) paradigm: life-prolonging care, limited/blended care and comfort care.

BEHAVIORAL

Palliative care written material

Written materials about palliative care conversation and advance directives.

Trial Locations (2)

10021

RECRUITING

Judith Jaffe Multiple Sclerosis Center, New York

10128

RECRUITING

Hunter College, New York

All Listed Sponsors
collaborator

National Center for Advancing Translational Sciences (NCATS)

NIH

lead

Hunter College of City University of New York

OTHER