50
Participants
Start Date
February 1, 2025
Primary Completion Date
February 1, 2026
Study Completion Date
June 30, 2026
Palliative care video comprises the conversation and advance directives.
The palliative care video was done in a way that facilitates discussion and minimizes anxiety or any psychological risk/burden. The video is narrated by a young adult who opens with an empathic statement regarding the situation the young adult/adult patient finds themselves in. Then, there is a transition to contemplating what the future might hold and decisions about medical care and introducing the concept of ACP. There is acknowledgment that decision making is difficult, and that the presence of caregivers often helps. There is an explicit statement regarding values and spiritual beliefs and how that might impact decision making. The video then attempts to translate the preceding conversation into actionable medical orders using the most common three-goal framework that is based on the Physician Orders for Life Sustaining Treatment (POLST) paradigm: life-prolonging care, limited/blended care and comfort care.
Palliative care written material
Written materials about palliative care conversation and advance directives.
RECRUITING
Judith Jaffe Multiple Sclerosis Center, New York
RECRUITING
Hunter College, New York
National Center for Advancing Translational Sciences (NCATS)
NIH
Hunter College of City University of New York
OTHER