90
Participants
Start Date
April 2, 2025
Primary Completion Date
August 31, 2026
Study Completion Date
August 31, 2027
Music therapy
Participants in the 2 experimental MT conditions (In person MT (InMT) or hybrid (inperson.virtual (HybMT) will receive 6 MT sessions over 6 weeks. Each MT session will last no longer than one hour. This 6-week treatment period may be extended to up to 8 weeks if a scheduling conflict prevents a participant from receiving the 6 MT sessions over 6 consecutive weeks.
Health education
The content for the HybHE control was adapted from Project PEEP: Patients Empowered and Educated Providers. The Sickle Cell Community Consortium developed Project PEEP with a grant from Global Blood Therapeutics. Project PEEP addresses unmet needs directly identified and prioritized by a collective of patients with SCD, caregivers, and community-based organizations. The objective is to provide the tools and resources to improve communication and increase positive patient-provider interactions to receive quality, timely care. For the proposed study, we will use modules from the curriculum developed for patients living with SCD.
NOT_YET_RECRUITING
Prisma Health Lifespan Comprehensive SCD Program, Greenville
RECRUITING
UH Seidman Cancer Center Adult SCD Clinic or UH Rainbow Babies and Children's Hospital Sickle Cell Anemia Center, Cleveland
National Center for Complementary and Integrative Health (NCCIH)
NIH
University of California, San Francisco
OTHER
Case Western Reserve University
OTHER
Prisma Health-Upstate
OTHER
University of Massachusetts Chan Medical School, Worcester
UNKNOWN
University of California, Irvine
OTHER