819
Participants
Start Date
June 1, 2025
Primary Completion Date
June 1, 2031
Study Completion Date
June 1, 2031
Neurodevelopmental assessment
This assessment will be conducted using the ASQ-3 test. (ASQ-3 stands for Ages and Stages Questionnaires, Third Edition, which is a common screening tool for evaluating developmental progress in young children.)
Meeting with the parents
This meeting will evaluate the parents' acceptance of the lesion and their quality of life using the MARKS test (Measure of Acceptance of Skin Marks). The results will provide insights into how the parents perceive the lesion and how it impacts their daily lives.
Patient quality of life assessment
Collection of patient quality of life data
Marseille University Hospital, Marseille
Dijon University Hospital, Dijon
Brest University Hospital, Brest
Toulouse University Hospital, Toulouse
Bordeaux University Hospital, Bordeaux
Rennes University Hospital, Rennes
Nantes University Hospital, Nantes
Angers University Hospital, Angers
Nancy University Hospital, Nancy
Saint Vincent de Paul Hospital, Lille
Paris Necker Hospital, Paris
La Réunion University Hospital, La Réunion
Grasse Hospital, Nice
Nice University Hospital and Lenval Hospital, Nice
Tours University Hospital, Tours
Nantes University Hospital
OTHER