Digital Self-Management and Peer Mentoring Intervention

NAEnrolling by invitationINTERVENTIONAL
Enrollment

300

Participants

Timeline

Start Date

March 4, 2025

Primary Completion Date

January 31, 2028

Study Completion Date

July 31, 2028

Conditions
Pediatric Cancer SurvivorSurvivorshipCancer
Interventions
BEHAVIORAL

Managing Your Health (MYH)

The Managing Your Health intervention consists of six weekly videoconference calls with a peer mentor and five self-management educational modules within a mobile application. The first call is to get to know each other, share survivorship stories, identify self-management strengths and weaknesses, and select goals for participation in the intervention. The remaining five weekly calls cover a self-management topic each week, including understanding your survivorship care plan, navigating the healthcare system and insurance, managing the emotional aspects of survivorship, negotiating family and significant other involvement in care, and engaging in healthy lifestyle behaviors.

BEHAVIORAL

The Usual Care + Educational Control

The Usual Care + Educational Control group will receive weekly emails with links to the Health Links developed by the Children's Oncology Group for use in survivorship care. Access to these Health Links reflects the current state of clinical care available to survivors. These Health Links were developed as patient education materials to cover relevant self-management and survivorship care topics. The weekly messages will align with the content of the modules from Managing Your Health to provide similar information, including Introduction to Long-Term Follow-Up (Module 1), Finding and Paying for Healthcare (Module 2), Emotional Issues (Modules 3 and 4), Educational Issues, Diet and Physical Activity, Skin Health, Reducing the Risk of Second Cancers, and Male/Female Health Issues (Module 5).

Trial Locations (2)

900339239

University of South California, Los Angeles

089011914

Rutgers Cancer Institute, New Brunswick

All Listed Sponsors
collaborator

National Cancer Institute (NCI)

NIH

collaborator

University of Southern California

OTHER

collaborator

Children's Hospital Los Angeles

OTHER

lead

Rutgers, The State University of New Jersey

OTHER