Impact of Optimized Recruitment and Follow-up of Patients with Pseudoxanthoma Elasticum (PXE)

Not yet recruitingOBSERVATIONAL
Enrollment

650

Participants

Timeline

Start Date

March 31, 2025

Primary Completion Date

January 31, 2031

Study Completion Date

January 31, 2031

Conditions
Pseudoxanthoma Elasticum
Interventions
OTHER

Pseudoxanthoma Elasticum

Answer to the PSQ-18, patient care confidence score (likert scale) and SF-12 questionaries at each visit, for an estimated duration of 15 minutes.

All Listed Sponsors
lead

University Hospital, Angers

OTHER_GOV

NCT06636344 - Impact of Optimized Recruitment and Follow-up of Patients with Pseudoxanthoma Elasticum (PXE) | Biotech Hunter | Biotech Hunter