660
Participants
Start Date
April 1, 2026
Primary Completion Date
September 30, 2027
Study Completion Date
March 30, 2030
patients will receive NPH education
Patients will benefit from the Hydrocephalus Association's (HA) educational strategy for idiopathic normal pressure hydrocephalus (iNPH) emphasizes patient collaboration in the development of educational materials specifically for this condition. HA has a library of assets that include PowerPoint presentations, videos, and online and print educational materials. There will be also in-person outreach resulting recruitment, website (the study website and HA website), webform (with a symptom of gait, dementia, and bladder symptoms), YouTube videos. The investigators will also go to the communities like senior centers, health fair, and churches, then we will give a talk about iNPH. These resources will be carefully adjusted to suit low-income demographics, guided by feedback from Baltimore audiences and HA's iNPH volunteers.
primary care physicians (PCPs) will receive professional NPH education
A comprehensive professional development program for PCPs and CHWs, featuring presentations, educational videos, webinars, and tools on iNPH diagnosis, treatment, and care management. Provider Continuing Medical Education (CME) credits will be offered for in-person lectures, aiming to equip PCPs with the skills needed to address iNPH in low-income settings effectively
A community health worker will assist PCP
A community health worker will assist PCP to identify barriers and help overcome these barriers in order for patient to access iNPH care.
Johns Hopkins University and Hospital, Baltimore
Johns Hopkins University, Baltimore
Johns Hopkins Bloomberg School of Public Health
OTHER