Addressing Health Disparities in Normal Pressure Hydrocephalus (NPH) in Maryland

NANot yet recruitingINTERVENTIONAL
Enrollment

660

Participants

Timeline

Start Date

April 1, 2026

Primary Completion Date

September 30, 2027

Study Completion Date

March 30, 2030

Conditions
Normal Pressure HydrocephalusHakim Syndrome
Interventions
OTHER

patients will receive NPH education

Patients will benefit from the Hydrocephalus Association's (HA) educational strategy for idiopathic normal pressure hydrocephalus (iNPH) emphasizes patient collaboration in the development of educational materials specifically for this condition. HA has a library of assets that include PowerPoint presentations, videos, and online and print educational materials. There will be also in-person outreach resulting recruitment, website (the study website and HA website), webform (with a symptom of gait, dementia, and bladder symptoms), YouTube videos. The investigators will also go to the communities like senior centers, health fair, and churches, then we will give a talk about iNPH. These resources will be carefully adjusted to suit low-income demographics, guided by feedback from Baltimore audiences and HA's iNPH volunteers.

OTHER

primary care physicians (PCPs) will receive professional NPH education

A comprehensive professional development program for PCPs and CHWs, featuring presentations, educational videos, webinars, and tools on iNPH diagnosis, treatment, and care management. Provider Continuing Medical Education (CME) credits will be offered for in-person lectures, aiming to equip PCPs with the skills needed to address iNPH in low-income settings effectively

OTHER

A community health worker will assist PCP

A community health worker will assist PCP to identify barriers and help overcome these barriers in order for patient to access iNPH care.

Trial Locations (2)

21205

Johns Hopkins University and Hospital, Baltimore

Johns Hopkins University, Baltimore

All Listed Sponsors
lead

Johns Hopkins Bloomberg School of Public Health

OTHER