Evaluating the Efficacy of a Mobile Epilepsy Education Application

NACompletedINTERVENTIONAL
Enrollment

72

Participants

Timeline

Start Date

June 10, 2024

Primary Completion Date

August 30, 2024

Study Completion Date

December 30, 2024

Conditions
EpilepsyEpilepsy in ChildrenAnxietyKnowledge, Attitudes, Practice
Interventions
OTHER

Mobile Epilepsy Education Package

"MEEP education section contains a range of topics. After completing the relevant section at the end of each week, participants complete the end-of-section test and switch to the next week's topic. Completion of the first part will take approximately 90-120 minutes per week for a total of 4 weeks of use.~Parental Monitoring Section, parents can actively record information on the mobile application related to their child's diagnosis (anonymous); treatments; timing and frequency of the seizures; and appointments; and schedule treatment and examination reminders to optimize compliance. Completion of this second part will take approximately 1-2 minutes and depends on the parental choice to use and how much information they would like to share. The second part, together with the first part, will be evaluated for a total of 1 month."

OTHER

Standard care consisting of epilepsy education

This standard care includes the information and education provided by nurses and physicians during visits and hospitalisations. Standard information and education include topics such as: counseling by the neurologist regarding seizure safety precautions, prognosis, and sudden unexpected death in epilepsy (SUDEP); provision of paper or electronic resources regarding epilepsy; and telephone support provided by neurology clinic nurse regarding any issues or concerns). Information and education is usually provided orally and through printed brochures.

Trial Locations (2)

H4A 3J1

Montreal Children's Hospital, Montreal

Research Institute of the McGill University Health Centre, Montreal

All Listed Sponsors
collaborator

The Scientific and Technological Research Council of Turkey

OTHER

lead

McGill University Health Centre/Research Institute of the McGill University Health Centre

OTHER

NCT06402526 - Evaluating the Efficacy of a Mobile Epilepsy Education Application | Biotech Hunter | Biotech Hunter