A Decentralized Clinical Trial to Promote Evidence-Based Care for Underserved Patients With Neurofibromatosis 1

NARecruitingINTERVENTIONAL
Enrollment

294

Participants

Timeline

Start Date

December 3, 2024

Primary Completion Date

June 30, 2026

Study Completion Date

August 31, 2026

Conditions
Neurofibromatosis 1
Interventions
OTHER

Letters about NF1 Care (Content Type 1)

Participants will receive two letters about NF1 care, one for themselves and one for their primary care clinician, to read in advance of the patient's annual wellness visit

OTHER

Letters about NF1 Care (Content Type 2)

Participants will receive two letters about NF1 care, one for themselves and one for their primary care clinician, to read in advance of the patient's annual wellness visit

Trial Locations (1)

02114

RECRUITING

Massachusetts General Hospital, Boston

All Listed Sponsors
collaborator

Patient-Centered Outcomes Research Institute

OTHER

lead

Massachusetts General Hospital

OTHER