45
Participants
Start Date
April 1, 2024
Primary Completion Date
February 10, 2025
Study Completion Date
May 1, 2025
Web-based psychoeducational resource
"The website will incorporate animations/illustrations to enhance comprehension, patient stories, and video-based expert explanations.~The materials will address the following content areas:~* Provide families with data demonstrating how prevalent social relationship struggles are for children with CDH.~* Describe specific social challenges that commonly affect children with CDH.~* Explain the impact that medications typically prescribed for CDH may have on social relationship health.~* Help families advocate for their child's social needs at school.~* Support children and their families in decision-making about appropriate disclosure with peers at school and in extracurricular settings.~* Offer strategies to support families in raising the issue of social relationship health with the child's sleep physician.~* Provide a list of programming which offers children both structured and unstructured opportunities for social engagement"
RECRUITING
Boston Children's Hospital, Boston
American Academy of Sleep Medicine
OTHER
Boston Children's Hospital
OTHER