Improving Social Relationships for Adolescents with Central Disorders of Hypersomnolence

NARecruitingINTERVENTIONAL
Enrollment

45

Participants

Timeline

Start Date

April 1, 2024

Primary Completion Date

February 10, 2025

Study Completion Date

May 1, 2025

Conditions
Narcolepsy Type 1Narcolepsy Type 2Idiopathic Hypersomnia
Interventions
BEHAVIORAL

Web-based psychoeducational resource

"The website will incorporate animations/illustrations to enhance comprehension, patient stories, and video-based expert explanations.~The materials will address the following content areas:~* Provide families with data demonstrating how prevalent social relationship struggles are for children with CDH.~* Describe specific social challenges that commonly affect children with CDH.~* Explain the impact that medications typically prescribed for CDH may have on social relationship health.~* Help families advocate for their child's social needs at school.~* Support children and their families in decision-making about appropriate disclosure with peers at school and in extracurricular settings.~* Offer strategies to support families in raising the issue of social relationship health with the child's sleep physician.~* Provide a list of programming which offers children both structured and unstructured opportunities for social engagement"

Trial Locations (1)

02115

RECRUITING

Boston Children's Hospital, Boston

All Listed Sponsors
collaborator

American Academy of Sleep Medicine

OTHER

lead

Boston Children's Hospital

OTHER