Penn Medicine Biobank Return of Results Program

NAEnrolling by invitationINTERVENTIONAL
Enrollment

2,500

Participants

Timeline

Start Date

October 20, 2023

Primary Completion Date

January 1, 2026

Study Completion Date

March 31, 2026

Conditions
Genetic DiseaseCancerCardiovascular Diseases
Interventions
OTHER

private web-portal eHealth disclosure of genetic results

The intervention involves delivering actionable genetic research results to participants via a secure, private web-portal.

OTHER

eHealth education intervention (web or chatbot)

The intervention involves pre-disclosure education via an eHealth intervention (web or chatbot). The intervention will review the types of actionable results being returned, the method of return, the differences between research and clinical testing, the need for confirmation testing and the benefits, risks and limitations of receiving actionable genetic research results and study steps and procedures.

Trial Locations (1)

19104

University of Pennsylvania, Philadelphia

All Listed Sponsors
collaborator

Fox Chase Cancer Center

OTHER

collaborator

Columbia University

OTHER

collaborator

Thomas Jefferson University

OTHER

lead

Abramson Cancer Center at Penn Medicine

OTHER