Improving the Health of Parents and Their Adolescent and Transition-age Youth With Intellectual and Developmental Disabilities

NARecruitingINTERVENTIONAL
Enrollment

404

Participants

Timeline

Start Date

August 8, 2023

Primary Completion Date

March 31, 2026

Study Completion Date

March 31, 2026

Conditions
Intellectual Disability
Interventions
BEHAVIORAL

Go Act

Go Act sessions address becoming a parent who can 'Go Act,' caring for one's self as a parent, understanding and managing youth health needs, working with health providers as partners, and working with other service providers such as schools and vocational services. The intervention uses motivational interviewing, story-telling with self-disclosure, psycho-education introduced with a know-want to know-learned strategy, problem-solving, role play, and practice outside of class.

BEHAVIORAL

Peer

During Peer sessions facilitators lay ground rules for respectful and confidential sharing and encourage group discussion. The group provides a format to make personal connections through shared identity. Participants may discuss strategies for individualized advocacy, so that they learn from the experiences of others.

Trial Locations (3)

27510

RECRUITING

The Carolina Institute for Developmental Disabilities, Carrboro

27514

RECRUITING

UNC Adult Psychiatry Clinic, Chapel Hill

28803

NOT_YET_RECRUITING

Family Medicine at the Mountain Area Health Education Center, Asheville

All Listed Sponsors
collaborator

Patient-Centered Outcomes Research Institute

OTHER

lead

University of North Carolina, Chapel Hill

OTHER