Long-term Outcomes of Patients Treated for Bladder Exstrophy by Questionnaires.

CompletedOBSERVATIONAL
Enrollment

42

Participants

Timeline

Start Date

April 20, 2023

Primary Completion Date

July 13, 2023

Study Completion Date

July 13, 2023

Conditions
Bladder Exstrophy
Interventions
OTHER

Self or straight administered questionnaire

"Self or straight administered questionnaire with 5 parts:~* General questionnaire (to collect socio-demographic data)~* ICIQ score to evaluate urinary continence~* FLQI score to evaluate fecal continence~* FSFI score to evaluate sexuality in women or IIEF-5 score to evaluate sexuality in men~* SF-12 score to evaluate quality of life The questionnaire will be sent to patients by email and/or mail. Patients will be able to either complete the questionnaire alone and return it to the primary investigator, or to request a telephone interview to help them to complete the questionnaire. The questionnaire is administered only once and the estimated response time to the questionnaire is between 30 minutes and one hour."

Trial Locations (2)

69500

Hôpital Femme Mère Enfant, Bron

Unknown

Hôpital Femme mère et enfant, Bron

All Listed Sponsors
lead

Hospices Civils de Lyon

OTHER