Impact of Dysregulation of Core Body Temperature on Sleep in Patients With Hypohidrotic Ectodermal Dysplasia

Sleep efficiency recording at home by means of actigraphy during 10 consecutive days.

"Recording of proximal and distal skin temperature at home by data loggers placed on the skin during 10 consecutive days.~Recording of temperature of the bedroom by a data logger during 10 consecutive days."

"One-off questionnaires assessing subjective sleep quality. The Pittsburgh Sleep Quality Index (PSQI) evaluates sleep quality with questions about sleep latency, sleep duration, habitual sleep efficiency, sleep disturbances, use of sleep medications, and daytime dysfunction during the last month.~The Epworth Sleepiness Scale evaluates daytime sleepiness and comprises 8 items (situations) during which individuals assess how likely they would fall asleep."

One-off measurement of sweating by a sweat test at the hospital.

Two urine melatonin at home during 24 hours, one during a week day and one during the weekend

Sleep architecture assessed by a polysomnography during one night at home.

One-off psychological and neuropsychological assessment of patients with HED during a hospital visit