273
Participants
Start Date
May 1, 2022
Primary Completion Date
December 31, 2023
Study Completion Date
December 31, 2023
Stanford Binet Intelligence Scales, Fifth Edition
The SB-5 is a comprehensive measure of cognitive and intellectual functioning for individuals from age two through 85 years of age. The SB-5 individually assess a child's functioning in five areas of cognitive functioning: Fluid Reasoning, Knowledge, Quantitative Reasoning, Visual Spatial, and Working Memory. The SB-5 is well established in the existing research literature as an assessment tool to evaluate developmental and intellectual abilities in children with ND disorders.
Vineland Adaptive Behavior Scales Third Edition
The VABS-3 are a parent report, interview style measure of adaptive behavior for individuals ages birth through 90 months. The VABS-3 assesses adaptive behavior in four broad domains of Communication, Daily Living Skills, Socialization, and Motor Skills, and includes a Maladaptive Behavior Domain that assesses problem behaviors.
Peabody Picture Vocabulary Test, Fifth Edition
The PPVT-5 is a norm-referenced language measure that evaluates single-word receptive vocabulary. The PPVT-5 provides standard scores for individuals ages 2.6 through 90 years.
Expressive Vocabulary Test, Third Edition
The EVT-3 is a norm-referenced language measure that evaluates single-word expressive vocabulary. The EVT-3 provides standard scores for individuals ages 2.6 through 90 years.
Leiter International Performance Scale, Third Edition
The Leiter-3 is a nonverbal measure of cognitive functioning and fluid reasoning skills in individuals ages 3 through 75 years. The Leiter-3 measures nonverbal IQ across four subscales, including Sequential Order (SO), Form Completion (FC), Classification and Analogies (CA), and Figure Ground (FG).
Social Communication Questionnaire, Current Form
The SCQ is a parent-report measure of social communication, social interactions, play, and behavior.
Aberrant Behavior Checklist
The ABC-2 is a parent report measure of problematic behavior at home and in the community. It measures behavior on five subscales (1) Irritability, (2) Social Withdrawal, (3) Stereotypic Behavior, (4) Hyperactivity/Noncompliance, and (5) Inappropriate Speech.
Repetitive Behavior Scale, Revised
The RBS-R is a parent report measure that comprehensively surveys for the presence of repetitive behaviors.
Columbia College of Physicians and Surgeons, New York
Children's Hospital of Philadelphia, Philadelphia
Alfred I. duPont Hospital for Children, Wilmington
Children's National Hospital, Washington D.C.
Medical University of South Carolina, Charleston
Children's Healthcare of Atlanta at Egleston, Atlanta
Cincinnati Children's Hospital Medical Center, Cincinnati
Riley Children's Hospital, Indianapolis
University of Michigan Health System/Mott Hospital, Ann Arbor
Children's Mercy Hospital, Kansas City
Baylor College of Medicine - Texas Children's Hospital, Houston
Primary Children's Hospital, Salt Lake City
Boston Children's Hospital, Boston
Hospital for Sick Children, Toronto
Lead Sponsor
National Heart, Lung, and Blood Institute (NHLBI)
NIH
National Institutes of Health (NIH)
NIH
Carelon Research
OTHER