Nurse-initiated Conversations for Early Integration of Palliative Care in Pediatric Oncology

NARecruitingINTERVENTIONAL
Enrollment

120

Participants

Timeline

Start Date

August 1, 2022

Primary Completion Date

October 31, 2025

Study Completion Date

December 31, 2025

Conditions
Solid TumorHematological Malignancies
Interventions
BEHAVIORAL

NiCE

Participants will receive an initial conversation led by a trained senior nurse within eight weeks after initial oncologic diagnosis or relapse/recurrent disease diagnosis, with an introduction to the intervention and learning about the goals, values, hopes, and fears of each patient and family. The PPC team will then follow each patient by ongoing regular conversations (related to the child and family's conditions) led by the same nurse, every 4 weeks for six months, when symptom assessment and management, goal-directed supportive care, team collaboration, and care coordination will be delivered according to the family's needs. Increased PPC involvement, end-of-life care and bereavement care will be involved when necessary. If a participant feels any discomfort or distress during the intervention, a break will be taken until they feel better. If not, the central contact person will come and discussion about the participant's feeling and wiliness to continue the intervention.

OTHER

Routine PPC

Participants will be scheduled to meet with the PPC team only when participants themselves, their families, or the attending oncologist requested an appointment.

Trial Locations (1)

201102

RECRUITING

Hemotology/Oncology Unit and Surgical Oncology Unit of Children's Hospital of Fudan University, Shanghai

All Listed Sponsors
lead

Children's Hospital of Fudan University

OTHER