300
Participants
Start Date
July 7, 2022
Primary Completion Date
June 30, 2026
Study Completion Date
December 31, 2026
Bilingual Brain Injury Education and outpatient Navigation for Hispanic families
1st BIEN was informed by Hispanic parents and clinical providers working with them. It considers their specific needs including lack of familiarity with shared decision models and of knowledge about patient rights and eligibility for community and school services. Based on principles of Social Cognitive Theory, 1st BIEN provides TBI education, teaches problem-solving skills to promote self-efficacy and advocacy; and provides outpatient navigation that allows for observational and experiential learning while supporting access to services in a timely manner. Central to the development of our intervention is the recognition of heterogeneity in individuals' level of readiness to adopt a health behavior according to their level of self-efficacy, expectations, and environment. The 1stBIEN intervention flexibly reduces barriers to access care, and simultaneously improves parental knowledge, health literacy, and self-efficacy to optimize outcomes.
RECRUITING
UT Southwestern Medical Center, Dallas
RECRUITING
Children's Hospital Colorado, Colorado Springs
WITHDRAWN
University of Utah, Salt Lake City
ACTIVE_NOT_RECRUITING
Oregon Health & Science University, Portland
RECRUITING
Harborview Medical Center - University of Washington, Seattle
RECRUITING
Seattle Children's Hospital, Seattle
Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD)
NIH
Seattle Children's Hospital
OTHER