87
Participants
Start Date
September 19, 2022
Primary Completion Date
December 20, 2024
Study Completion Date
December 20, 2024
Accelerometer
For the following study, each patient will be asked to wear a portable device over a 7-day period. The accelerometer will be previously set up according to anthropometric data of the patient and scheduled to automatically start and stop accelerations registration. The patient will be asked to wear the sensor as frequently as possible, with the exception of sleep period and during aquatic activities. A diary will be delivered to the patient in order to notify any problem/issue observed during the evaluation week (for example forgetting to wear the sensor). The accelerometry assessment will be associated to a questionnaire. Each patient will have to fill in it during the evaluation week. The questionnaire is composed of various questions from three different questionnaires: Ricci \& Gagnon for subjective evaluation of PA level, CFQ-14+ for the evaluation of quality of life specifically in CF and EQ-5D for a more generic evaluation of quality of life.
CHU DE TOULOUSE Hôpital des Enfants - CRCM Pédiatrique, Toulouse
CHU DE BORDEAUX Hôpital des Enfants-Pellegrin - CRCM Pédiatrique, Bordeaux
CHU DE BORDEAUX Hôpital Haut-Lévêque - CRCM Adulte, Bordeaux
CHU DE LIMOGES Hôpital Dupuytren 2 - CRCM Adulte, Limoges
CHU DE LIMOGES Hôpital Mère Enfant - CRCM Pédiatrique, Limoges
CHU DE TOULOUSE Hôpital Larrey - CRCM Adulte, Toulouse
University Hospital, Limoges
OTHER