23
Participants
Start Date
January 26, 2022
Primary Completion Date
August 31, 2022
Study Completion Date
August 31, 2022
Interview
"During each interview, patients will be asked questions to collect demographic and clinical information, and asked a set of open-ended questions with probes to describe their experiences with Fabry disease (symptomology and impacts on patient's lives \[i.e., activities of daily living, school/work, ability to take holidays/vacation\]), and pegunigalsidase alfa treatment (experience of infusions and schedule) and their experience of change in symptoms and impacts over the BRIGHT-F51 clinical study.~A semi-structured discussion guide will be used to conduct the approximately 60-minute interviews. The use of open-ended questions avoids bias and questions will not be read verbatim to allow for a free-flowing discussion."
#50, Copenhagen
#22, Antwerp
#01, Fairfax
#03, Atlanta
#02, Birmingham
#11, Grand Rapids
#04, Iowa City
#06, Dallas
#56, Napoli
#05, Salt Lake City
#28, Cambridge
#07, London
Protalix
INDUSTRY
Iqvia Pty Ltd
INDUSTRY
Chiesi Farmaceutici S.p.A.
INDUSTRY