Parents in Transition - a Nurse-led Support and Transfer Education Program

"The intervention is a transfer program (ParTNer-STEPs), offered to the parents 1½ - ½ year before their child´s transfer to adult care.~ParTNer-STEPs consist of~1. an informative website available for parents from recruitment until follow-up.~2. online educational events for parents. The teaching events are offered twice a year as a web based seminar with short presentations on different topics. The seminars will not be available for parents after their child has transferred to adult care.~3. transfer consultations across the paediatric and adult department. The transition consultations consist of:~ * a preparatory consultation (3-6 months before transfer) with the paediatric nurse.~ * a farewell consultation with the paediatric nurse (0-3 months before transfer).~ * a joint consultation (at transfer) where both the pediatrician and the adult physician will be present.~ * a welcoming consultation with the nurse from the adult care (0-3 months after transfer)."