Registry to Collect Health Information Related to Fibrolamellar Cancer

Active, not recruitingOBSERVATIONAL
Enrollment

100

Participants

Timeline

Start Date

November 24, 2021

Primary Completion Date

April 30, 2026

Study Completion Date

April 30, 2026

Conditions
Fibrolamellar CancerFLCLiver Cancer
Interventions
BEHAVIORAL

Questionnaire

The questionnaire will be completed at the time of enrollment, every month, and at the end of study. Regardless of current interventions or lack of, assessments will be completed at enrollment and then monthly for a total of 18 months. In order to provide reasonable flexibility to participants, physicians, and study teams, the assessments can be completed within 30 days of the last assessment. The next month will be recalculated based on last reporting date.

Trial Locations (1)

10065

Memorial Sloan Kettering Cancer Center (All Protocol Activities), New York

All Listed Sponsors
lead

Memorial Sloan Kettering Cancer Center

OTHER