FACE for Children With Rare Diseases

NACompletedINTERVENTIONAL
Enrollment

42

Participants

Timeline

Start Date

July 6, 2021

Primary Completion Date

December 31, 2023

Study Completion Date

June 1, 2024

Conditions
Rare Diseases
Interventions
BEHAVIORAL

FAmily CEntered (FACE) pACP Intervention

The (approximately) weekly 3-session FACE-Rare intervention of approximately 45-60 minutes each is comprised of the CSNAT approach \[Sessions 1 \& 2\] and Respecting Choices \[Session 3\].

Trial Locations (1)

20010

Children's National Hospital, Washington D.C.

All Listed Sponsors
collaborator

Respecting Choices

UNKNOWN

collaborator

National Institutes of Health (NIH)

NIH

collaborator

National Institute of Nursing Research (NINR)

NIH

lead

Children's National Research Institute

OTHER