A Non-interventional Cohort Safety Study of Patients With hATTR-PN

RecruitingOBSERVATIONAL
Enrollment

240

Participants

Timeline

Start Date

September 21, 2021

Primary Completion Date

March 31, 2036

Study Completion Date

March 31, 2036

Conditions
Hereditary Transthyretin Amyloidosis With Polyneuropthy
Interventions
OTHER

Data Collection

"Data on each patient will be collected at study enrollment and at each follow-up visit.~No mandatory visits, tests, or assessments are required for this study. All visits will be scheduled and conducted according to the clinical site's normal clinical practice."

Trial Locations (26)

1431

RECRUITING

Study Centre, Sofia

2371

RECRUITING

Study Centre, Égkomi

11528

RECRUITING

Study Center, Athens

16132

RECRUITING

Study Center, Genova

20133

RECRUITING

Study Center, Milan

21005

RECRUITING

Study Center, Huelva

27100

RECRUITING

Study Center, Pavia

28040

RECRUITING

Study Centre, Madrid

28041

RECRUITING

Study Center, Madrid

33011

RECRUITING

Study Centre, Oviedo

40139

RECRUITING

Study Center, Bologna

44093

RECRUITING

Study Centre, Nantes

59037

RECRUITING

Study Center, Lille

69120

RECRUITING

Study Center, Heidelberg

71500

RECRUITING

Study Center, Heraklion

80131

RECRUITING

Study Center, Napoli

98125

RECRUITING

Study Center, Messina

06001

RECRUITING

Study Center, Nice

115 28

RECRUITING

Study Center, Athens

00189

RECRUITING

Study Centre, Roma

00133

RECRUITING

Study Center, Roma

00168

RECRUITING

Study Center, Roma

1649 035

RECRUITING

Study Center, Lisbon

07198

RECRUITING

Study Center, Palma de Mallorca

08036

RECRUITING

Study Centre, Villarreal

08035

RECRUITING

Study Centre, Barcelona

Sponsors

Lead Sponsor

All Listed Sponsors
collaborator

United BioSource, LLC

INDUSTRY

lead

Akcea Therapeutics

INDUSTRY

NCT04850105 - A Non-interventional Cohort Safety Study of Patients With hATTR-PN | Biotech Hunter | Biotech Hunter