216
Participants
Start Date
April 1, 2021
Primary Completion Date
December 31, 2025
Study Completion Date
December 31, 2025
Symptom Monitoring & Systematic Assessment and Reporting System in Young Survivors (SyMon-SAYS)
Participants will complete a 9-item SyMon-SAYS symptom assessment checklist every week during the intervention phase (Intervention Group: weeks 1-16; Waitlist Control: weeks 9-16) through Epic MyChart via mobile app, computer or tablet. Patients' symptom scores will be monitored and reported to their oncology care providers. When a patient symptom score trigger threshold is met, the system will generate an email alert through Epic (electronic medical record system) messaging to the provider. The provider will take appropriate actions using his/her clinical judgement, including contacting patients and families when needed. Symptom scores overtime will be available in MyChart (patient-facing component of the Epic electronic medical record system) for patients and parents to review and to discuss with the child's provider during clinical visits.
Ann & Robert H. Lurie Childrens Hospital of Chicago, Chicago
Ann & Robert H Lurie Children's Hospital of Chicago
OTHER
National Cancer Institute (NCI)
NIH
Northwestern University
OTHER