Using Information Technology to Improve Outcomes for Children Living With Cancer

NAActive, not recruitingINTERVENTIONAL
Enrollment

216

Participants

Timeline

Start Date

April 1, 2021

Primary Completion Date

December 31, 2025

Study Completion Date

December 31, 2025

Conditions
Cancer
Interventions
BEHAVIORAL

Symptom Monitoring & Systematic Assessment and Reporting System in Young Survivors (SyMon-SAYS)

Participants will complete a 9-item SyMon-SAYS symptom assessment checklist every week during the intervention phase (Intervention Group: weeks 1-16; Waitlist Control: weeks 9-16) through Epic MyChart via mobile app, computer or tablet. Patients' symptom scores will be monitored and reported to their oncology care providers. When a patient symptom score trigger threshold is met, the system will generate an email alert through Epic (electronic medical record system) messaging to the provider. The provider will take appropriate actions using his/her clinical judgement, including contacting patients and families when needed. Symptom scores overtime will be available in MyChart (patient-facing component of the Epic electronic medical record system) for patients and parents to review and to discuss with the child's provider during clinical visits.

Trial Locations (1)

60611

Ann & Robert H. Lurie Childrens Hospital of Chicago, Chicago

All Listed Sponsors
collaborator

Ann & Robert H Lurie Children's Hospital of Chicago

OTHER

collaborator

National Cancer Institute (NCI)

NIH

lead

Northwestern University

OTHER