720
Participants
Start Date
August 5, 2022
Primary Completion Date
December 31, 2027
Study Completion Date
December 31, 2028
Correlative Studies (Survey)
Administer surveys
Correlative Studies (Interview)
In-depth interviews among a subset of participants after the 12-month follow-up survey to either: 1) determine additional resources and tailored message that would be helpful; or 2) assess the adaptive intervention
GeneSHARE
Access to GeneSHARE, a web-based toolkit which includes interactive and narrative components to enhance FC of genetic test results.
LivingLabReport
Access to LivingLabReport, a website containing multiple resources including a summary of the patient's genetic test results, condition-specific information, recommended CRM, and information on accessing CRM services.
Standard-of-care & Adaptive Intervention
Receive standard-of-care from their treating healthcare provider. A subset of individuals will also be asked to test and pilot the adaptive intervention, which will consist of tailored resources to promote CRM and FC, after the 12-month follow-up survey.
Access to Education Materials
Receive access to VUS educational materials
Vanderbilt-Ingram Cancer Center, Nashville
National Cancer Institute (NCI)
NIH
University of South Florida
OTHER
Vanderbilt-Ingram Cancer Center
OTHER