94
Participants
Start Date
February 8, 2021
Primary Completion Date
February 1, 2023
Study Completion Date
February 1, 2023
HM-PRO
"The intervention group will have a predetermined consultation appointment planned to assess medical status and symptom control. Seven days prior to the scheduled visit, the patient will receive an electronic invitation via RedCap to complete and send PRO data (HM-PRO). Prior to each appointment PRO data will be evaluated by a nurse from an algorithm deciding one of three tracks for the patients:~1. Worsening in symptoms results in a nurse-led telephone consultation within two days guided by the symptom management manual.~2. Minor changes in patient's symptom assessment result in a nurse-led telephone consultation within seven days using the symptom management manual.~3. Patients that are completely stable in the symptom assessment will receive an electronic answer via min-SP (electronic patient journal) regarding the results and a new appointment, including PRO-data prior to this."
Dept. of Hematology, Copenhagen
Collaborators (1)
Novo Nordisk A/S
INDUSTRY
Rigshospitalet, Denmark
OTHER