279
Participants
Start Date
October 27, 2020
Primary Completion Date
September 20, 2022
Study Completion Date
October 1, 2022
Electronic Health Record (EHR) Embedded Individualized Pain Plan (IPP)
"The IPPs will be developed by the Sickle Cell Disease providers at each study site based on patients' outpatient chronic opioid use and analgesic agent normally required for treatment of VOE in the ED. The Sickle Cell Disease provider will review the IPP with the patient, then upload the IPP to the patient's EHR in a location that will be accessible by the patient and ED provider. Each participating site will train patients and Emergency Department (ED) providers on how to access the IPP in the Electronic Health Record. The following required elements will be included in the EHR-embedded IPP:~* Genotype~* Individual pain plan-preferred analgesic agent, route, dose and dosing interval, last update time~* Name and contact information for the SCD provider~If the enrolled patient has a VOE visit at a nonparticipating ED, the patient will be able to access their IPP via the web or the patient portal app through their EHR. However, data will not be collected from these visits."
Icahn School of Medicine at Mount Sinai, New York
Duke University, Durham
Medical University of South Carolina, Charleston
Georgia Regents University, Augusta
St. Jude's, Memphis
University of Illinois, Chicago
Washington University, St Louis
University of California San Francisco, Oakland
Lead Sponsor
National Heart, Lung, and Blood Institute (NHLBI)
NIH
RTI International
OTHER
Duke University
OTHER