NEPTUNE Match Study

Enrolling by invitationOBSERVATIONAL
Enrollment

375

Participants

Timeline

Start Date

March 1, 2021

Primary Completion Date

June 30, 2029

Study Completion Date

June 30, 2029

Conditions
Nephrotic Syndrome in ChildrenFocal Segmental GlomerulosclerosisMinimal Change DiseaseMinimal Change Nephrotic SyndromeMembranous NephropathyFSGSMCDMCD - Minimal Change Disease
Interventions
OTHER

Communication

The NEPTUNE Match study includes an interdisciplinary Communication Team that will translate findings from the Molecular Nephrology Board (MNB) to inform patients of the matching assessment with ongoing clinical trials. This team has considerable experience with conveying complex biomedical research information to patients and families and includes experts in precision nephrology, nephrology patient \[adult and pediatric\] communication, and health education.

Trial Locations (16)

10032

Columbia University Medical Center, New York

11040

Northwell/Cohen's Children's Hospital, New Hyde Park

19104

Hospital of the University of Pennsylvania, Philadelphia

19122

Temple University, Philadelphia

21287

Johns Hopkins Medicine, Baltimore

27514

University of North Carolina Chapel Hill, Chapel Hill

29425

Medical University of South Carolina, Charlotte

30322

Emory University Hospital - Children's Hospital of Atlanta, Atlanta

44106

Cleveland Clinic Foundation, Cleveland

48109

University of Michigan, Ann Arbor

60612

John H. Stroger, Jr., Hospital of Cook County, Chicago

64108

Children's Mercy Hospital, Kansas City

66160

University of Kansas Medical Center, Kansas City

98105

Seattle Children's Hospital, Seattle

98195

University of Washington Medical Center, Seattle

99204

Providence Sacred Heart Medical Center, Spokane

All Listed Sponsors
collaborator

National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK)

NIH

lead

University of Michigan

OTHER