Angelman Syndrome Natural History Study

RecruitingOBSERVATIONAL
Enrollment

300

Participants

Timeline

Start Date

August 1, 2018

Primary Completion Date

April 30, 2031

Study Completion Date

April 30, 2031

Conditions
Angelman Syndrome
Trial Locations (11)

27510

RECRUITING

The Carolina Institute for Developmental Disabilities, Carrboro

30322

RECRUITING

Emory University School of Medicine, Atlanta

37232

RECRUITING

Monroe Carell Jr. Children's Hospital at Vanderbilt, Nashville

60612

RECRUITING

Rush University Children's Hospital, Chicago

80045

RECRUITING

Children's Hospital Colorado, Anschutz Medical Campus, Aurora

90048

NOT_YET_RECRUITING

Cedars-Sinai Guerin Children's, Los Angeles

92123

RECRUITING

Rady Children's Hospital, San Diego, San Diego

02115

RECRUITING

Boston Children's Hospital, Boston

Unknown

RECRUITING

Alberta Children's Hospital, Calgary

RECRUITING

BC Children's Hospital, Vancouver

RECRUITING

Children's Hospital of Eastern Ontario, Ottawa

All Listed Sponsors
collaborator

University of California, San Diego

OTHER

collaborator

Angelman Syndrome Biomarker & Outcome Measure Consortium (A-BOM)

UNKNOWN

collaborator

Food and Drug Administration (FDA)

FED

collaborator

Angelman Syndrome Foundation Canada

UNKNOWN

collaborator

Foundation for Angelman Syndrome Therapeutics Canada

UNKNOWN

collaborator

Foundation for Angelman Syndrome Therapeutics

UNKNOWN

collaborator

Angelman Syndrome Foundation, Inc.

OTHER

lead

Boston Children's Hospital

OTHER