391
Participants
Start Date
August 16, 2021
Primary Completion Date
March 5, 2025
Study Completion Date
December 31, 2025
Remote Telegenetic Counseling by Phone
Participants will receive standard of care pre-test and disclosure genetic counseling with a genetic counselor by Telephone.
Remote Telegenetic Counseling by Videoconferencing
Participants will receive standard of care pre-test and disclosure genetic counseling with a genetic counselor using Videoconferencing Technology.
Usual Care Arm
Participants in the usual care arm will receive usual care services depending on which referral method they choose and if they initiate services. After a 6 month status survey, if they have not had genetic services through usual care they will be offered services and re-randomized to ARM A/ARM B.
University of Pennsylvania, Philadelphia
University of Chicago Medical Center, Chicago
St Jude Children's Research Hospital, Memphis
University of Pennsylvania
OTHER
St. Jude Children's Research Hospital
OTHER
Fox Chase Cancer Center
OTHER
National Cancer Institute (NCI)
NIH
University of Chicago
OTHER