Direct Information to At-risk Relatives

NAActive, not recruitingINTERVENTIONAL
Enrollment

490

Participants

Timeline

Start Date

February 6, 2020

Primary Completion Date

December 31, 2023

Study Completion Date

July 1, 2025

Conditions
Familial Breast CancerFamilial Colorectal CancerHereditary Breast and Ovarian Cancer SyndromeHereditary Breast CancerLynch Syndrome
Interventions
OTHER

Standard care encouraging family-mediated disclosure of hereditary cancer risk

At counseling, eligible at-risk relatives (who may benefit from disclosure of risk information) are listed on a specified protocol in collaboration between health care provider and the participant.

OTHER

Offer of health-care assisted disclosure by sending direct letters to at-risk relatives

The participant is offered that the health care provider at the cancer genetic unit mail a direct letter with personalized family risk information to all at-risk relatives that participant approve contact with.

Trial Locations (1)

90185

Cancergenetisk mottagning, Umeå

All Listed Sponsors
collaborator

Göteborg University

OTHER

collaborator

Lund University

OTHER

collaborator

Karolinska Institutet

OTHER

lead

Umeå University

OTHER