NCT04043273 - Treatment-related Benefit and Satisfaction in Fabry Patients. Insight in Patients Expectations and Preferences | Biotech Hunter

Enrollment

Participants

Timeline

Start Date

April 4, 2019

Primary Completion Date

January 30, 2023

Study Completion Date

January 30, 2023

Conditions

Fabry DiseaseAnderson Fabry Disease

Interventions

BEHAVIORAL

Noninterventional characterization of patients expectations and preferences regarding their treatment

Patients will be clustered before and after a principal components analysis (PCA) on Patients Needs Questionnaire (PNQ). Observations will be clustered by the Ward method. The number of clusters will be chosen using the Kolinski criteria. Characteristics of patients will be described by cluster.

Trial Locations (15)

13000

Hôpital de la Conception, Marseille

14033

Hôpital Côte de Nacre, Caen

21000

CHU de Dijon, Dijon

31000

CHU de Toulouse, Toulouse

33000

CHU Pellegrin, Bordeaux

35000

CHU de Rennes, Rennes

37000

CHU de Tours, Tours

44000

CHU de Nantes, Nantes

49000

CHU d'Angers, Angers

59037

CHRU de Lille, Lille

67000

CHU de Strasbourg, Strasbourg

69000

Hôpital Femme Mère Enfant, Lyon

75000

Hopital Tenon, Paris

76100

CHU de Rouen, Rouen

Unknown

Groupe Hospitalier Diaconesses Croix Saint-Simon, Paris